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Re-claiming citizenship through the arts.
Sherry L Dupuis1, Pia Kontos2, Gail Mitchell3
1Department of Recreation and Leisure Studies and Partnerships in Dementia Care Alliance, University of Waterloo, Waterloo, Canada sldupuis@uwaterloo.ca.
Dementia (London, England)
|May 13, 2016
Summary
This study challenges the "doomed" narrative of dementia by using arts-based methods. It shows how art can combat stigma and restore citizenship rights for people with dementia.
Area of Science:
- Gerontology
- Social Sciences
- Arts-Based Research
Background:
- Dominant healthcare narratives portray persons with dementia as "doomed" and "socially dead."
- This tragedy meta-narrative perpetuates misunderstandings, stigma, and discrimination against individuals with dementia.
- Persons with dementia face barriers to exercising their citizenship rights due to prevailing discourse.
Purpose of the Study:
- To interrogate the dominant tragedy discourse surrounding dementia.
- To construct an alternative, empowering narrative of dementia through arts-based methods.
- To explore the concept of narrative citizenship for persons living with dementia.
Main Methods:
- A community-based, critical arts-based project involving persons with dementia, family members, artists, and researchers.
- Interrogation of the tragedy discourse through collaborative artistic expression.
- Construction of alternative narratives of dementia utilizing visual and performance arts.
Main Results:
- The arts created transformative spaces for challenging assumptions about dementia.
- The project fostered critical reflection and envisioned new possibilities for support and relationships.
- An alternative narrative was constructed, supporting the reclamation of citizenship for persons with dementia.
Conclusions:
- Arts-based initiatives can effectively challenge negative dementia discourse and reduce stigma.
- This approach promotes narrative citizenship, empowering individuals with dementia.
- Fostering relational citizenship through arts-based methods benefits all involved.
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