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Published on: November 11, 2014
Administration of Home Intravenous Chemotherapy to Children by their Parents
Claire McCall1, Michelle Mannion1, Carol Hilliard1
11 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
Insights
Parents successfully administered home chemotherapy after receiving training, reporting significant benefits like reduced costs and family stress. The program effectively addressed initial parental concerns, ensuring safe and positive outcomes for children with cancer.
Area of Science:
- Pediatric Oncology
- Home Healthcare Management
- Family Support Systems
Background:
- Childhood cancer treatment significantly impacts family life, finances, and child development.
- Minimizing negative effects of illness and hospitalization is crucial for pediatric cancer patients and their families.
- Home chemotherapy administration offers a potential solution to mitigate treatment burdens.
Purpose of the Study:
- To evaluate a nationwide initiative supporting parents in administering chemotherapy to their children at home.
- To assess parental perspectives on home chemotherapy education, benefits, and concerns.
- To determine the safety and efficacy of a home-based chemotherapy program.
Main Methods:
- A questionnaire survey was distributed to parents (n=140) in a home chemotherapy program (2009-2014).
- Data collection involved assessing parental satisfaction with training, perceived benefits, and concerns.
- Analysis utilized descriptive statistics and content analysis of parent feedback.
Main Results:
- A high response rate (77%, n=108) was achieved, with 100% of parents finding the training adequate.
- Initial parental nervousness (41%) was effectively managed by the education program.
- Key benefits included reduced costs, travel, family disruption, and stress; no medication errors were reported.
Conclusions:
- The home chemotherapy program, emphasizing a partnership approach, empowers parents with informed decision-making.
- The program is well-received, demonstrating feasibility and safety in managing pediatric chemotherapy at home.
- Home administration significantly reduces burdens on children and families undergoing cancer treatment.
Objectives:
Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child's social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home.
Method:
A questionnaire was circulated to parents participating in a home chemotherapy program from 2009 to 2014 (n = 140), seeking their perspective on the education program, and the benefits and concerns associated with administering home chemotherapy. Data analysis was conducted using a combination of descriptive statistics and content analysis.
Results:
Questionnaires were received from 108 parents (response rate = 77%). Overall, the program was positively evaluated with 100% of parents (n = 108) reporting that the training met their needs. More than one-third of parents (41%, n = 44) initially felt nervous about home chemotherapy but reported that the education program helped assuage their concerns. Benefits included reduced financial costs, reduced travel time to hospital, less disruption to family life, and less stress for the child and family. No medication errors were reported during the evaluation period.
Conclusion:
An important feature of the program is the partnership approach, which ensures that parents' decision to enter the program is informed, appropriate for their situation, and centered on the needs of the child.
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