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Updated: Mar 20, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
OC06 - Involving parents in their child's care - where next?
Joanna Smith1, Veronica Swallow1, Imelda Coyne2
1University of Leeds, United Kingdom.
Unlabelled:
Theme: Complex health care and chronic disease management.
Introduction:
Health policy advocates that professionals involve parents in care and care decisions, yet models advocating involvement are not embedded into practice.
Aim:
Identify the shared antecedents and key attributes associated with embedding family-centred care (FCC) and partnership-in-care (PiC) into practice.
Methods:
A concept synthesis was undertaken by searching three databases (Scopus, CINAHL, BNI 1999-2014); shared antecedents and attributes were extrapolated from the 30 studies that met defined inclusion criteria.
Results:
Unclear roles and boundaries, entrenched professional practices and lack of guidelines hinder FCC/PiC implementation. An alternative framework was developed based on the actions and skills required to support parents' involvement in care and care decisions.
Discussion:
Greater focus on the skills required to facilitate involvement may negate the challenges of embedding FCC/PiC.
Conclusion:
The framework for involvement can help guide nurses' actions towards building effective relationships and involving parents in care decisions.
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