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OC21 - Psychosocial functioning of parents of infants diagnosed with complex congenital heart defect

Konstantinos Petsios1, Vassiliki Matziou2, Ioanna Voutoufianaki1

  • 1'Onassis' Cardiac Center, Greece.

Nursing Children and Young People
|May 24, 2016
PubMed

Insights

Parenting a child with complex congenital heart disease (CHD) significantly affects parental well-being. Targeted interventions can help most parents adapt, but some remain at higher risk for distress.

Area of Science:

  • Pediatric cardiology
  • Parental mental health
  • Family systems

Background:

  • Diagnosis of complex congenital heart disease (CHD) profoundly impacts parental psychosocial status.
  • Parenting challenges are amplified by the medical complexities and emotional toll of CHD.

Purpose of the Study:

  • To critically evaluate existing literature on the psychosocial responses of parents to an infant's complex CHD diagnosis.
  • To synthesize findings on parental adaptation and identify risk factors for distress.

Main Methods:

  • Systematic review of 18 research articles.
  • Literature search conducted in PubMed and CINAHL, focusing on publications after 2000.

Main Results:

  • Parental adaptation is influenced by the child's medical condition and family psychosocial factors.
  • Most parents experience significant loss and stress; healthcare providers must be sensitive to their needs.
  • Families with limited social support may require more professional intervention.

Conclusions:

  • Interventions can effectively support most parents in adapting to a child's complex CHD diagnosis.
  • A subset of parents faces elevated psychosocial risk and increased emotional distress.
Abstract

Keywords:
Congenital heart defect (CHD)parentingpsychosocial.

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