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Improving HIV Surveillance Data for Public Health Action in Washington, DC: A Novel Multiorganizational Data-Sharing
Joanne Michelle F Ocampo1, J C Smart2, Adam Allston3
1The Office of the Senior Vice President for ResearchGeorgetown UniversityWashington, DCUnited States.
A new data-sharing method improves human immunodeficiency virus (HIV) surveillance by accurately matching records across jurisdictions, enhancing public health action. This approach reduces manual review efforts while maintaining high accuracy for HIV data quality.
Area of Science:
- Public Health Surveillance
- Data Science
- Epidemiology
Background:
- National HIV/AIDS Strategy emphasizes active surveillance for HIV care continuum monitoring.
- Traditional surveillance faces data sharing barriers due to technological and privacy concerns.
- Cross-jurisdictional travel complicates accurate HIV surveillance in areas like DC, MD, and VA.
Purpose of the Study:
- Develop and evaluate a novel data-sharing approach for HIV surveillance.
- Improve the timeliness and quality of HIV surveillance data.
- Address data sharing challenges in multi-jurisdictional settings.
Main Methods:
- Developed a deterministic algorithm with a person-matching system using Enhanced HIV/AIDS Reporting System (eHARS) variables.
- Categorized person matching from exact to very low strength.
- Verified algorithm through component testing, code inspection, and output examination; validated by jurisdictions.
Main Results:
- Matched 21,472 individuals across DC, MD, and VA from 161,343 eHARS records in under 22 minutes.
- Over 80% of matches were exact or very high.
- Validation methods confirmed ≥90% accuracy compared to traditional matching.
Conclusions:
- Novel data-sharing approach enhances HIV surveillance data quality and timeliness for public health.
- Reduced manual effort in person-matching without compromising accuracy.
- Potential for broader application in public health surveillance data sharing.
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