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Published on: April 7, 2023
Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010
Insights
Infant hospice care is utilized by over 15% of eligible infants, with girls and those with congenital anomalies more likely to enroll. Nurses can help families navigate end-of-life care options.
Area of Science:
- Pediatric Palliative Care
- Neonatal Health Outcomes
- End-of-Life Care Research
Background:
- Infant deaths represent a significant portion of pediatric mortality.
- Factors influencing parental decisions for infant hospice care remain underexplored for infants with life-threatening conditions.
Purpose of the Study:
- To investigate factors associated with hospice care utilization among infants with life-threatening conditions.
- To identify characteristics of infants and conditions influencing hospice enrollment and length of stay.
Main Methods:
- Analysis of California Medicaid claims data from 2007-2010 (N=207).
- Utilized logistic and negative binomial multivariate regression models to analyze hospice enrollment and length of stay.
Main Results:
- Over 15% of infants were enrolled in hospice care, with an average stay of 5 days.
- Infant girls and those with congenital anomalies showed higher likelihood of hospice enrollment and longer stays.
- Cardiovascular and respiratory conditions were negatively associated with hospice enrollment and length of stay.
Conclusions:
- Findings offer insights for clinicians caring for infants at end-of-life.
- Nurses can play a crucial role in guiding families toward appropriate infant hospice providers and end-of-life care options.
Background:
Infant deaths account for a majority of all pediatric deaths. However, little is known about the factors that influence parents to use hospice care for their infant with a life-threatening health condition.
Methods:
Data were used from 2007 to 2010 California Medicaid claims files (N = 207). Analyses included logistic and negative binomial multivariate regression models.
Results:
More than 15% of infants enrolled in hospice care for an average of 5 days. Infant girls and infants with congenital anomalies were more likely to enroll in hospice care and to have longer stays. However, cardiovascular and respiratory conditions were negatively related to hospice enrollment and hospice length of stay.
Conclusions:
This study provides insights for nurses and other clinicians who care for infants and their families at end of life and suggests that nurses can assist families in identifying infant hospice providers who may help families understand their options for end-of-life care.
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