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Interdisciplinary psychosocial care for families with inherited cardiovascular diseases

Colleen Caleshu1, Nadine A Kasparian2, Katharine S Edwards1

  • 1Stanford Center for Inherited Cardiovascular Disease and Stanford Cardiovascular Institute, Stanford, CA.

Trends in Cardiovascular Medicine
|June 4, 2016
PubMed

Insights

Families with inherited cardiovascular diseases face unique psychosocial challenges. An interdisciplinary approach integrating psychological care improves management and adherence to recommendations.

Area of Science:

  • Cardiology
  • Genetics
  • Psychology

Background:

  • Inherited cardiovascular diseases (ICVDs) present complex psychosocial challenges for families, including lifelong disease management, sudden death risk, grief, activity limitations, and genetic inheritance concerns.
  • These psychosocial factors significantly influence mental and physical health, as well as patient adherence to medical advice.

Purpose of the Study:

  • To describe an interdisciplinary care model for families affected by ICVDs.
  • To provide practical guidance for clinicians managing these complex cases.

Main Methods:

  • The study outlines an integrated approach where psychological support from cardiac genetic counselors, nurses, and psychologists is part of the cardiovascular care team.
  • Illustrative cases and literature review are used to demonstrate common scenarios.

Main Results:

  • The interdisciplinary model aims to address the multifaceted psychosocial needs of families with ICVDs.
  • Practical guidance is offered for healthcare providers in this specialized field.

Conclusions:

  • Integrating specialized psychological care within cardiovascular teams is crucial for managing families with ICVDs.
  • This approach can enhance patient well-being and clinical outcomes by addressing psychosocial impacts.

Keywords:
Genetic testingHypertrophic cardiomyopathyPsychological wellbeingQuality of life

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