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Experience, Knowledge, and Concerns About Long-Term Services and Supports: Implications for Financing Reform.
Galina Khatutsky1, Joshua M Wiener2, Angela M Greene3
1a Program Manager, Senior Health Policy Researcher, Aging, Disability & Long-Term Care Program, RTI International , Waltham , Massachusetts , USA.
Americans worry about disability and long-term care needs, preferring to stay home. Many have experience with long-term services and supports (LTSS), but knowledge of how these systems work is limited.
Area of Science:
- Gerontology
- Public Health
- Health Services Research
Background:
- Long-term services and supports (LTSS) are crucial for aging populations.
- Understanding public awareness and concerns regarding LTSS is vital for policy development.
- The 2014 Survey of Long-Term Care Awareness and Planning provides a national perspective.
Purpose of the Study:
- To examine Americans' experiences, knowledge, and concerns about LTSS.
- To assess willingness to take action if disabled.
- To inform LTSS reform initiatives and political support.
Main Methods:
- Analysis of the 2014 Survey of Long-Term Care Awareness and Planning.
- Inclusion of 15,298 non-institutionalized respondents aged 40-70.
- Utilizing a nationally representative sample.
Main Results:
- Many respondents had some experience with LTSS, but knowledge of LTSS mechanisms was low.
- Widespread concerns about potential disability were reported.
- Preference for informal care and remaining at home over paid care was evident.
Conclusions:
- Findings highlight a gap between LTSS experience and knowledge.
- Public concerns about disability underscore the need for accessible LTSS.
- Results can guide the design of effective LTSS reforms and advocacy efforts.
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