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Using Facebook to Reach People Who Experience Auditory Hallucinations
Benjamin Sage Crosier1, Rachel Marie Brian, Dror Ben-Zeev
1Center for Technology and Behavioral Health, Department of Biomedical Data Science, Dartmouth College, Lebanon, NH, United States. benjamin.crosier@dartmouth.edu.
Journal of Medical Internet Research
|June 16, 2016
Summary
Social media platforms like Facebook can effectively recruit individuals experiencing auditory hallucinations for research. Many participants are open to using these platforms for support and technology-based mental health treatment.
Area of Science:
- Psychiatry and Mental Health
- Digital Health and Technology
- Social Science Research Methods
Background:
- Auditory hallucinations, such as hearing voices, are common yet underreported sensory experiences causing distress and impairment.
- Many individuals experiencing auditory hallucinations remain unidentified and untreated due to traditional engagement challenges.
- Existing methods often fail to reach the diverse population affected by auditory hallucinations.
Purpose of the Study:
- To assess the feasibility of using social media for engaging individuals with auditory hallucinations.
- To evaluate attitudes towards social media as a resource for web-based support and technology-based treatment.
- To explore the potential of digital platforms in mental health research and intervention.
Main Methods:
- Facebook advertisements were utilized to recruit participants for a web-based survey on auditory hallucinations and technology use.
- Systematic testing and optimization of advertisement elements (images, targeting) and survey design (layout, question order) were performed.
- Inductive content analysis was applied to open-ended responses, with coded data quantified for frequency analysis.
Main Results:
- A total of 264 participants were recruited over six weeks, with 97 completing the survey at a cost of $8.14 per participant.
- Optimized recruitment strategies enhanced data quality and cost-efficiency.
- Participants expressed willingness to share triggers, coping strategies, and suggestions related to auditory hallucinations; openness to Facebook support was higher among women, mobile phone users, and those with greater distress.
Conclusions:
- Facebook advertisements provide a rapid and cost-effective method for recruiting research participants experiencing auditory hallucinations.
- A majority of respondents (58%) are receptive to social media-based support and treatment, and willing to discuss their experiences.
- Social media platforms show promise for future mental health research and intervention delivery for auditory hallucinations.
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