Redefining the patient-carer model at end of life

While the patient-carer dyad has been broadly described, there is little exploration of patient-carer models in use.

To explore types of patient-carer models in use for those with advanced and progressive disease.

Qualitative interviews were undertaken with patients at risk of dying in the next year and their carers across three sites (residential care home, medical assessment unit, general medical unit). Thematic analysis was undertaken.

Four patient-carer models were identified. In these, the provision of care and of coordination of care services were important areas and organised differently across the patient, the carer, and alternative sources of support.

A 'one size fits all' patient-carer model is outdated and a new understanding of different types of patient-carer models are required to fully inform care delivered at end of life.