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The lived experience of having a rare medical disorder: Hermansky-Pudlak syndrome

Stacy Christensen1, Linda Wagner2, Melissa M Coleman3

  • 11 Department of Nursing, Central Connecticut State University, New Britain, CT, USA.

Chronic Illness
|July 1, 2016
PubMed

Keywords:
Hermansky–Pudlak syndromeLived experiencealbinismgeneticsrare disease

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