Health Literacy Among Parents of Newborn Infants

Amy Mackley1, Michael Winter, Ursula Guillen

  • 1Department of Pediatrics, Division of Neonatology, Christiana Care Health System, Newark, Delaware (Ms Mackley and Drs Guillen, Paul, and Locke); Philadelphia College of Osteopathic Medicine, Philadelphia, Pennsylvania (Mr Winter); and Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, Pennsylvania (Drs Guillen, Paul, and Locke).

Insights

Limited health literacy is prevalent in parents of infants in neonatal intensive care units (NICUs) and other hospital settings. This highlights a critical need for improved health communication strategies for these vulnerable families.

Area of Science:

  • Health Services Research
  • Patient Communication
  • Neonatal Care

Background:

  • Health literacy is crucial for informed healthcare decisions.
  • Understanding parental health literacy in the NICU is essential for effective communication.

Purpose of the Study:

  • To assess the baseline health literacy of parents with infants in a neonatal intensive care unit (NICU).
  • To evaluate health literacy during critical information exchange periods for NICU parents.

Main Methods:

  • The Newest Vital Sign (NVS) assessed health literacy in English-speaking NICU parents (n=121 on admission, n=59 at discharge).
  • Control groups included well-baby nursery (WBN) and prenatal (PRE) parents.
  • Suspected limited health literacy (SLHL) was defined as an NVS score of 3 or less.

Main Results:

  • 43% of NICU parents and 32% at discharge exhibited SLHL.
  • SLHL rates were 25% for WBN and 58% for PRE parents.
  • Parental demographics did not correlate with health literacy; nurse assessments of comprehension did not align with objective measures.

Conclusions:

  • Limited health literacy is common in NICU, WBN, and PRE settings during complex health discussions.
  • NICU providers may inaccurately assess parental health literacy.
  • Improved health communication methods and further research in diverse populations are necessary.
Abstract

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