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Updated: Mar 18, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Health Literacy Among Parents of Newborn Infants
Amy Mackley1, Michael Winter, Ursula Guillen
1Department of Pediatrics, Division of Neonatology, Christiana Care Health System, Newark, Delaware (Ms Mackley and Drs Guillen, Paul, and Locke); Philadelphia College of Osteopathic Medicine, Philadelphia, Pennsylvania (Mr Winter); and Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, Pennsylvania (Drs Guillen, Paul, and Locke).
Insights
Limited health literacy is prevalent in parents of infants in neonatal intensive care units (NICUs) and other hospital settings. This highlights a critical need for improved health communication strategies for these vulnerable families.
Area of Science:
- Health Services Research
- Patient Communication
- Neonatal Care
Background:
- Health literacy is crucial for informed healthcare decisions.
- Understanding parental health literacy in the NICU is essential for effective communication.
Purpose of the Study:
- To assess the baseline health literacy of parents with infants in a neonatal intensive care unit (NICU).
- To evaluate health literacy during critical information exchange periods for NICU parents.
Main Methods:
- The Newest Vital Sign (NVS) assessed health literacy in English-speaking NICU parents (n=121 on admission, n=59 at discharge).
- Control groups included well-baby nursery (WBN) and prenatal (PRE) parents.
- Suspected limited health literacy (SLHL) was defined as an NVS score of 3 or less.
Main Results:
- 43% of NICU parents and 32% at discharge exhibited SLHL.
- SLHL rates were 25% for WBN and 58% for PRE parents.
- Parental demographics did not correlate with health literacy; nurse assessments of comprehension did not align with objective measures.
Conclusions:
- Limited health literacy is common in NICU, WBN, and PRE settings during complex health discussions.
- NICU providers may inaccurately assess parental health literacy.
- Improved health communication methods and further research in diverse populations are necessary.
Background:
Health Literacy is the ability to obtain, process, and understand health information to make knowledgeable health decisions.
Purpose:
To determine baseline health literacy of neonatal intensive care unit (NICU) parents at a tertiary care hospital during periods of crucial information exchange.
Methods:
Health literacy of English-speaking NICU parents was assessed using the Newest Vital Sign (NVS) on admission (n = 121) and discharge (n = 59). A quasi-control group of well-baby nursery (WBN) parents (n = 24) and prenatal obstetric clinic (PRE) parents (n = 18) were included. A single, Likert-style question measured nurses' assessment of parental comprehension with discharge teaching. Suspected limited health literacy (SLHL) was defined as the NVS score of 3 or less.
Findings/Results:
Forty-three percent of parents on NICU admission and 32% at NICU discharge had SLHL (P < .01). SLHL for WBN and PRE parents was 25% and 58%, respectively. Parental age, gender, location, and history of healthcare-related employment were not associated with health literacy status at any time point. Thirty-nine percent of NICU parents and 25% of WBN parents with SLHL at time of admission/infant birth had a college education. Nurse subjective measurement of parental comprehension of discharge instructions was not correlated to the objective measurement of health literacy (P = .26).
Implications For Practice:
SLHL is common during peak time periods of complex health discussion in the NICU, WBN, and PRE settings. NICU providers may not accurately gauge parents' literacy status.
Implications For Research:
Methods for improving health communication are needed. Studies should evaluate SLHL in a larger NICU population and across different languages and cultures.
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