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[Not Available].

Pascal Bilbault1, Nathalie Beslay2, Laurence Carton3

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Summary
This summary is machine-generated.

Active patient participation in clinical trials requires clear communication strategies. This working group developed a toolbox of communication methods, addressing ethical, regulatory, and practical constraints for all stakeholders.

Keywords:
biomedical researchcommunication en santéhealth communicationmethodsméthodespatientsrecherche biomédicalerecommandationsrecommendations

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Area of Science:

  • Clinical research
  • Patient engagement
  • Health communication

Context:

  • Active patient participation is crucial for competitive clinical research.
  • Effective communication is often hindered by ethical, regulatory, technical, and financial barriers.
  • The Health Industry Physicians and Actors Association (AMIPS) formed a working group to address these communication challenges.

Purpose:

  • To develop evidence-based communication recommendations for patients in clinical trials.
  • To identify and address the expectations and limitations of patients, investigators, and industry sponsors.
  • To create a practical 'toolbox' of communication strategies.

Summary:

  • A multidisciplinary working group, including patients, investigators, and industry representatives, was convened.
  • They identified key barriers to effective communication in clinical trials.
  • A comprehensive toolbox of communication strategies, covering before and during a study, was developed.

Impact:

  • Provides clear guidelines on ethical and regulatory requirements for patient communication.
  • Offers practical solutions to overcome technical and financial constraints.
  • Enhances patient engagement and participation in clinical research through improved communication.