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Ethical and methodological issues in research with Sami experiencing disability.

Line Melbøe1, Ketil Lenert Hansen2, Bjørn-Eirik Johnsen2

  • 1Department of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway; line.melboe@uit.no.

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This study highlights ethical and methodological challenges in researching disability among Norwegian Sami people. Addressing these issues is crucial for inclusive and respectful research with indigenous populations.

Keywords:
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Area of Science:

  • Indigenous Health Research
  • Disability Studies
  • Qualitative Research Methodology

Background:

  • Research on disability among Norwegian Sami people presents unique ethical and methodological challenges.
  • These challenges are seldom discussed in existing literature, necessitating further exploration.

Purpose of the Study:

  • To increase understanding of ethical and methodological issues in research concerning disability among indigenous Sami people.
  • To describe and discuss identified issues and propose strategies for addressing them.

Main Methods:

  • A qualitative study involving 31 semi-structured in-depth interviews.
  • Participants included 24 Sami individuals with disabilities and 13 next of kin.

Main Results:

  • Four primary areas of ethical and methodological challenges were identified chronologically: knowledge concept, access, data collection, and analysis/accountability.
  • The study details specific issues encountered in each of these areas.

Conclusions:

  • The findings offer valuable insights for future health research involving Norwegian Sami people and indigenous populations globally.
  • This research provides a scientific basis for navigating ethical and methodological complexities in indigenous disability research.