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Participation levels in 25 Community-based participatory research projects
C R Spears Johnson1, A E Kraemer Diaz1, T A Arcury2
1Department of Family and Community Medicine, Wake Forest School of Medicine, Winston-Salem, NC 27157, USA.
Community engagement in research varies widely. Standardizing community-based participatory research (CBPR) is needed to ensure effective participation and avoid negative social impacts.
Area of Science:
- Public Health
- Social Sciences
- Health Services Research
Background:
- Community-based participatory research (CBPR) is funded by NIH and CDC.
- Understanding the extent and nature of community participation in CBPR is crucial.
Purpose of the Study:
- To describe community participation in NIH and CDC-funded CBPR projects.
- To explore the scientific and social implications of varying levels of community participation.
Main Methods:
- In-depth interviews were conducted in 2012 with researchers from 25 CBPR projects in the Southeast US.
- Projects were assessed based on community participation across 13 research components.
Main Results:
- Community participation varied significantly across projects, from 2-3 components to all 13.
- Researchers' approaches to community inclusion ranged from deliberate integration to ensuring basic opportunities for participation.
Conclusions:
- A standardized rubric for CBPR is needed to define effective and efficient approaches.
- Limited community participation may lead to adverse social consequences for communities.
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