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Published on: September 27, 2020
Positive cardiometabolic health for adults with intellectual disability: an early intervention framework
Julian Trollor1, Carmela Salomon1, Jackie Curtis2
1Department of Developmental Disability Neuropsychiatry, University of New South Wales, 34 Botany Street, Sydney, NSW 2052, Australia.
Insights
This study introduces a new cardiometabolic monitoring framework for individuals with intellectual disability (ID). It addresses unique needs and barriers to improve health outcomes for this population.
Area of Science:
- Cardiology
- Public Health
- Intellectual Disability Research
Background:
- Cardiometabolic morbidity significantly impacts health outcomes in people with intellectual disability (ID).
- Existing monitoring tools require adaptation for the specific needs and altered risk profiles of individuals with ID.
- Improved cardiometabolic monitoring is crucial for better health outcomes in this population.
Purpose of the Study:
- To describe a novel cardiometabolic monitoring framework tailored for individuals with intellectual disability (ID).
- To address the unique challenges and extra needs of people with ID in cardiometabolic care.
- To provide a toolkit of resources for clinicians, individuals with ID, and their carers.
Main Methods:
- Adaptation of a generalist guideline through extensive consultation with experts in ID and cardiometabolic health.
- Incorporation of strategies to overcome barriers like communication difficulties and fear of medical procedures.
- Consideration of socioeconomic and genetic factors influencing cardiometabolic risk.
- Rationalization of psychotropic medication prescriptions.
Main Results:
- A comprehensive monitoring framework designed for the ID population.
- Inclusion of practical strategies to address specific barriers to care.
- Emphasis on a multidisciplinary and holistic approach to cardiometabolic health.
- Availability of a toolkit with tailored resources for support.
Conclusions:
- The developed framework promotes a more effective and personalized approach to cardiometabolic monitoring for individuals with ID.
- Addressing barriers and individual risk factors is key to improving cardiometabolic health in this group.
- The framework and toolkit support a collaborative, multidisciplinary care model for better health outcomes.
Abstract:
Cardiometabolic morbidity is a significant contributor to the poorer health outcomes experienced by people with intellectual disability (ID). Tailoring cardiometabolic monitoring tools developed for the general population to better fit the altered risk profiles and extra needs of people with ID may help to improve health outcomes. This paper describes a new cardiometabolic monitoring framework designed to address the extra needs of people with ID. The framework was adapted from a generalist guideline after a process of extensive consultation with the original authors and over 30 ID and cardiometabolic experts. In addition to standard cardiometabolic monitoring practice, the framework encourages clinicians to: anticipate and address barriers to care such as communication difficulties and fear of blood tests; account for socioeconomic and genetic factors altering baseline cardiometabolic risk; and carefully rationalize psychotropic prescription. Together with this framework, a toolkit of free cardiometabolic resources tailored for people with ID and formal and informal carers is included. The monitoring framework promotes a multidisciplinary and holistic approach to cardiometabolic care for people with ID.
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