Health in adults with congenital heart disease

Judith A A E Cuypers1, Elisabeth M W J Utens2, Jolien W Roos-Hesselink1

  • 1Department of Cardiology, Erasmus MC, Rotterdam, The Netherlands.

Maturitas
|July 25, 2016
PubMed

Insights

Adults with congenital heart disease face ongoing health issues, including cardiac and non-cardiac complications, years after treatment. This review details long-term morbidity in this growing patient population.

Area of Science:

  • Cardiology
  • Adult Congenital Heart Disease
  • Long-term Health Outcomes

Background:

  • Advances in cardiac surgery have dramatically improved survival for children with congenital heart defects.
  • The population of adults with congenital heart disease (ACHD) is growing and aging.
  • Congenital heart defect repair is not a cure, leading to potential late complications.

Purpose of the Study:

  • To review the long-term cardiac and non-cardiac morbidity in adults with congenital heart disease.
  • To highlight the ongoing health challenges faced by the ACHD population.
  • To inform clinical practice and patient management for ACHD.

Main Methods:

  • Narrative review of existing literature.
  • Synthesis of information on late complications in ACHD.
  • Focus on cardiac, hemodynamic, neurodevelopmental, and psychosocial aspects.

Main Results:

  • Late morbidity in ACHD can stem from the original defect, surgical/medical treatments, or chronic hemodynamic changes.
  • Non-cardiac complications, including neurodevelopmental and psychosocial issues, are significant in ACHD.
  • Adults with congenital heart disease require lifelong monitoring and management for diverse health problems.

Conclusions:

  • Lifelong surveillance is crucial for adults with congenital heart disease to manage late complications.
  • Comprehensive care addressing both cardiac and non-cardiac issues is essential for the ACHD population.
  • Understanding long-term morbidity is key to improving quality of life for adults with congenital heart disease.

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