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Assessing child symptom severity and stress in parents of autistic children
M M Konstantareas1, S Homatidis
1Clarke Institute of Psychiatry, Toronto, Ontario, Canada.
Insights
Parents perceive autistic children
Area of Science:
- Developmental Psychology
- Child Psychiatry
- Clinical Psychology
Background:
- Autism Spectrum Disorder (ASD) significantly impacts children and families.
- Parental perception of symptom severity and caregiver stress are crucial factors in ASD management.
- Understanding factors influencing parental perception and stress is vital for targeted support.
Purpose of the Study:
- To investigate parental perception of autistic children's symptom severity.
- To identify child and family characteristics influencing parental perception and stress.
- To compare parental stress levels in mothers of autistic children versus mothers of typically developing children.
Main Methods:
- Parents of 44 autistic children completed a 14-item symptom severity and caregiver stress scale.
- Thirteen child and family characteristics were assessed.
- Comparison group: mothers of typically developing children.
Main Results:
- Parents rated preschoolers with autism as less symptomatic than clinicians did.
- Higher symptom ratings were associated with lower functioning, nonverbal communication, self-abuse, seizures, and irritability.
- Child's self-abuse was the strongest predictor of parental stress; maternal stress also linked to child's irritability and older age.
Conclusions:
- Parental perception of autism symptoms can differ from clinical assessments.
- Specific child characteristics significantly influence parental stress.
- Mothers of autistic children report higher stress and need for spousal support.
Abstract:
Parents of 44 autistic children rated their children's symptom severity and their own stress on a 14-item symptom scale. Thirteen child and family characteristics were also examined to assess how they affected symptom perception and stress. Preschoolers were rated less symptomatic by their parents than by clinicians. Lower functioning, nonverbal, odd-looking, self-abusive, seizuring and hyperirritable children were rated more symptomatic than their peers. Best predictor of stress for both parents was a child's self-abuse; for mothers hyperirritability and older age were also associated with elevated stress scores. Compared with parents of matched normal children, mothers of autistic children reported the most aggravations and expressed the need for additional support from their spouses.
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