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Perception of risk and shared decision making process in multiple sclerosis.

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Summary

Balancing the benefits and risks of powerful multiple sclerosis (MS) drugs is crucial. Patient and neurologist risk perception significantly impacts shared decision-making for MS management.

Keywords:
Multiple sclerosisdisabilityempowermentengagementillnessparticipation preferenceperception of riskshare decision-makingtherapy

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Area of Science:

  • Neurology
  • Pharmacology
  • Health Psychology

Background:

  • Multiple sclerosis (MS) treatments have advanced with highly effective drugs.
  • These potent therapies carry increased risks of severe adverse events.
  • This necessitates careful benefit-risk assessment in MS care.

Purpose of the Study:

  • To review the role of risk perception in shared decision-making for MS.
  • To explore strategies for enhancing patient empowerment and engagement in MS management.

Main Methods:

  • Literature review focusing on risk perception in MS treatment decisions.
  • Analysis of factors influencing shared decision-making in multiple sclerosis.

Main Results:

  • Risk perception by persons with MS (pwMSs) and neurologists is a key factor in MS management decisions.
  • Individual, emotional, social, and experiential factors dynamically shape risk perception.
  • Empowerment and engagement strategies can improve the shared decision-making process.

Conclusions:

  • Shared decision-making in MS requires understanding and addressing the risk perceptions of both patients and clinicians.
  • Dynamic, individualized approaches are needed to optimize MS treatment choices.
  • Enhancing patient engagement is vital for effective multiple sclerosis care.