Health Care Changes for Children with Special Health Care Needs, 2005-2011

Thomas Sannicandro1, Susan L Parish2, Esther Son1,3

  • 1Lurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, 415 South Street, MS 035, Waltham, MA, 02454, USA.

Insights

Children with special health care needs faced greater unmet dental and therapy needs, with less care coordination and medical home access in 2009/10 compared to 2005/06. Further measures are needed to improve their healthcare access.

Area of Science:

  • Pediatrics
  • Health Services Research
  • Public Health

Background:

  • Children with special health care needs (CSHCN) often experience complex health and social challenges.
  • Understanding trends in healthcare utilization for CSHCN is crucial for policy and service development.

Purpose of the Study:

  • To compare healthcare utilization patterns among CSHCN between the 2005/06 and 2009/10 survey periods.
  • To identify changes in unmet needs, care coordination, and access to a medical home for CSHCN.

Main Methods:

  • Utilized data from the National Survey of Children with Special Health Care Needs (CSHCN) for 2005/06 (n=40,723) and 2009/10 (n=40,242).
  • Employed descriptive statistics to characterize the study samples.
  • Applied logistic regression models to analyze unmet needs, delayed care, care coordination, and medical home access.

Main Results:

  • CSHCN experienced increased unmet dental and therapy needs in 2009/10 compared to 2005/06.
  • Access to care coordination and medical home services decreased for CSHCN in 2009/10.
  • Trends indicated a worsening of specific healthcare access indicators for CSHCN over the study period.

Conclusions:

  • Findings highlight a decline in key healthcare access indicators for CSHCN between 2005/06 and 2009/10.
  • There is an urgent need for enhanced strategies to improve healthcare access and support services for CSHCN.
  • Policy interventions should focus on addressing unmet dental, therapy, and care coordination needs.

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