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Development and Pilot Testing of Caregiver-Reported Pediatric Quality Measures for Transitions Between Sites of Care
Arti D Desai1, Q Burkhart2, Layla Parast2
1Department of Pediatrics, University of Washington, Seattle, WA; Seattle Children's Research Institute, Seattle, WA.
Insights
Researchers developed new caregiver-reported quality measures for pediatric hospital and emergency department (ED) to home transitions. These measures identified disparities in care quality based on caregiver education and language, highlighting areas for improvement in healthcare transitions.
Area of Science:
- Healthcare quality improvement
- Pediatric patient safety
- Caregiver-reported outcomes
Background:
- Limited availability of validated measures to assess the quality of pediatric care transitions between healthcare settings.
- Need for patient- and caregiver-centered metrics to evaluate transitions from hospital and emergency departments (EDs) to home.
Purpose of the Study:
- To develop and pilot test caregiver-reported quality measures for pediatric transitions from hospital and ED to home.
- To assess the feasibility and initial validity of these newly developed measures.
Main Methods:
- Evidence review and RAND-UCLA Modified Delphi method with a multistakeholder panel to develop draft measures.
- Operationalization of endorsed measures into two surveys administered to 2839 caregivers post-discharge.
- Analysis of measure scores based on survey mode (mail vs. telephone) and caregiver characteristics.
Main Results:
- Eight new evidence-based quality measures were developed (6 for hospital-to-home, 2 for ED-to-home transitions).
- Significant differences in reported scores were observed based on caregiver educational attainment and language, particularly for follow-up appointment scheduling assistance.
- Caregivers with lower educational attainment or who were Spanish-speaking reported higher scores on certain quality measures.
Conclusions:
- Successfully developed and pilot tested 8 new caregiver-reported quality measures for pediatric transitions.
- Pilot testing provided valuable insights into measure performance and potential disparities in perceived care quality.
- Findings support future testing and implementation of these measures to enhance pediatric transition quality.
Background:
Few measures exist to assess pediatric transition quality between care settings. The study objective was to develop and pilot test caregiver-reported quality measures for pediatric hospital and emergency department (ED) to home transitions.
Methods:
On the basis of an evidence review, we developed draft caregiver-reported quality measures for transitions between sites of care. Using the RAND-UCLA Modified Delphi method, a multistakeholder panel endorsed measures for further development. Measures were operationalized into 2 surveys, which were administered to caregivers of patients (n = 2839) discharged from Seattle Children's Hospital between July 1 and September 1, 2014. Caregivers were randomized to mail or telephone survey mode. Measure scores were computed as a percentage of eligible caregivers who endorsed receiving the indicated care. Differences in scores were examined according to survey mode and caregiver characteristics.
Results:
The Delphi panel endorsed 6 of 8 hospital to home transition measures and 2 of 3 ED to home transitions measures. Scores differed significantly according to mode for 1 measure. Caregivers with lower levels of educational attainment and/or Spanish-speaking caregivers reported significantly higher scores on 3 of the measures. The largest difference was reported for the measure that assessed whether caregivers received assistance with scheduling follow-up appointments; 92% score for caregivers with lower educational attainment versus 79% for caregivers with higher educational attainment (P < .001).
Conclusions:
We developed 8 new, evidence-based quality measures to assess transition quality from the perspective of caregivers. Pilot testing of these measures in a single institution yielded valuable insights for future testing and implementation of these measures.
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