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The Minimum Basic Data Set (MBDS) as a tool for cancer epidemiological surveillance
Pablo Fernández-Navarro1, Gonzalo López-Abente1, Carmen Salido-Campos2
1Cancer and Environmental Epidemiology Unit, National Center for Epidemiology, Carlos III Institute of Health, Avda Monforte de Lemos, 5, 28029 Madrid, Spain; Consortium for Biomedical Research in Epidemiology & Public Health (CIBER en Epidemiología y Salud Pública - CIBERESP), Spain.
European Journal of Internal Medicine
|August 9, 2016
Summary
The Minimum Basic Data Set (MBDS) effectively detects malignant tumors with over 60% sensitivity and high specificity, aiding cancer surveillance. This valuable tool offers timely epidemiological data, especially where hospital cancer registry data is limited.
Area of Science:
- Oncology
- Public Health
- Health Informatics
Background:
- The Minimum Basic Data Set (MBDS) is a hospital discharge database.
- Cancer registries like the Hospital Cancer Registry (HCR) are crucial for epidemiological surveillance.
- Timely and accurate cancer data is essential for public health initiatives.
Purpose of the Study:
- To evaluate the Minimum Basic Data Set (MBDS) as a data source for detecting malignant tumors.
- To explore the MBDS's utility for epidemiological surveillance of cancer.
- To assess the diagnostic performance of MBDS compared to a dedicated Hospital Cancer Registry.
Main Methods:
- Linked MBDS and HCR data from January 2012 to June 2014.
- Analyzed cancer types with over 100 cases.
- Calculated sensitivity, specificity, positive predictive value (PPV), and negative predictive value (NPV) for MBDS against HCR diagnoses.
Main Results:
- MBDS identified 3438 cancer cases; HCR recorded 2445.
- Overall sensitivity of MBDS for cancer detection exceeded 60%, varying by tumor type (highest for bladder cancer).
- Specificity and NPV were consistently high (>95%), while PPV was moderate (50-70%).
Conclusions:
- MBDS is a valuable tool for cancer monitoring due to acceptable sensitivity and high specificity.
- MBDS provides timely epidemiological information, overcoming HCR data consolidation delays.
- MBDS can help mitigate data gaps in cancer surveillance in certain regions of Spain.
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