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PN FOR CHILDREN - INFORMATION LEAFLET
Rebecca Riddell1, Anthony Lewis1, David Tuthill1
1Cardiff and Vale University Health Board.
Insights
A new leaflet was created to explain parenteral nutrition (PN) to parents and carers of children. This written guide ensures consistent, accessible information about PN, improving understanding and support for families.
Area of Science:
- Pediatric Nutrition
- Patient Education
Background:
- Parenteral nutrition (PN) requires clear communication to parents/carers.
- Current verbal explanations lack consistency and may overwhelm families.
Purpose of the Study:
- To develop an informative leaflet for parents/carers of children receiving PN.
- To provide consistent, accessible information on PN, its administration, risks, and support.
Main Methods:
- Literature search and expert consultation to assess existing resources.
- Multidisciplinary nutrition team input (consultants, nurses, pharmacist, dietitian).
- Draft leaflet developed and refined based on feedback from parents of pediatric PN inpatients.
Main Results:
- A comprehensive, visually engaging leaflet was produced.
- The leaflet covers essential aspects of PN, including what it is, why it's given, administration, risks, and contact information.
- Utilizes color and images to enhance readability and engagement.
Conclusions:
- The developed leaflet serves as a valuable resource for parents and carers.
- It standardizes information delivery and allows families more time to process crucial details about their child's PN.
- The pharmacist is designated as the primary contact for leaflet distribution.
Aim:
To produce a leaflet for parents and carers of children receiving parenteral nutrition (PN) explaining:▸ What PN is▸ Why it is given▸ How it will be given▸ Risks & Complications▸ Other useful information▸ Nutrition team contact informationCurrent practice is for the nutrition team pharmacist to give a verbal account of the above information to parents/carers. It was felt that providing this information in a written format would introduce consisitency and allow parents/carers more time to take information on board.
Method:
An internet search and discussions with other organisations with paediatric gastroenterology specialists was conduted to see if something similar was in existence. A similar information leaflet to what we hoped to produce was not found. Members of the paediatric nutrition team, which included consultants, nurse specialists, pharmacist and dietician, provided input to the type of information that should be included in the information leaflet. A first draft of the leaflet was produced and shown to the parents of current paediatric PN inpatients. Feedback was received and the leaflet updated following consultation with the nutrition team.
Conclusion:
Production of a very useful information leaflet for parents/carers, containing all the relevant information and detail. The leaflet uses colour and pictures to aid the transfer of information and makes it more attractive to read. The pharmacist is the main point of contact for the paediatric nutrition team and will be the individual responsible for distributing them.
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