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Early Experiences Engaging Patients Through Patient and Family Advisory Councils
Deborah Peikes1, Ann S OʼMalley, Claire Wilson
1Mathematica Policy Research (Drs Peikes, Crosson, and Keith, and Ms Little), Princeton, New Jersey; Mathematica Policy Research (Dr O'Malley and Ms Natzke), Washington, District of Columbia; Insight Policy Research (Dr Wilson and Ms Gaddes), Arlington, Virginia; Centers for Medicare & Medicaid Services (Mr Day), Baltimore, Maryland; and Group Health Research Institute (Ms Cromp and Dr Ralston), Seattle, Washington.
Abstract:
Primary care practices are increasingly asked to engage patients in improving care delivery. We report early experiences with Patient and Family Advisory Councils (PFACs) from interviews of patients and practice staff in the Comprehensive Primary Care initiative, and identify ways to improve PFACs. Patients and practice staff report PFACs help practices elicit patient feedback and, in response, improve care delivery. Nonetheless, there are areas for refinement, including recruiting more diverse patients, providing an orientation to members, overcoming reticence of some patients to raise issues, and increasing transparency by sharing progress with PFAC members and patients in the practice more generally.
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