The International Endometriosis Evaluation Program (IEEP Study) - A Systematic Study for Physicians, Researchers and
S Burghaus1, T Fehm2, P A Fasching3
1Department of Gynecology and Obstetrics, Erlangen University Hospital, Friedrich Alexander University of Erlangen-Nuremberg, Comprehensive Cancer Center Erlangen-EMN, Erlangen, Germany.
Geburtshilfe Und Frauenheilkunde
|September 2, 2016
Summary
A new documentation system aids endometriosis research by systematically collecting patient data and biomaterials. This facilitates a deeper understanding of the disease
Area of Science:
- Reproductive Medicine
- Clinical Research Methodology
- Biomarker Discovery
Background:
- Endometriosis is a complex, heterogeneous disease with varied presentations, often leading to delayed diagnosis.
- Patients face significant unmet needs due to diagnostic and therapeutic challenges.
- Understanding endometriosis etiology, pathogenesis, and progression is crucial.
Purpose of the Study:
- To establish a systematic registration and follow-up system for endometriosis patients.
- To facilitate a prospective multicenter case-control study for endometriosis research.
- To enable the validation of biomarkers for improved diagnosis and treatment prediction.
Main Methods:
- Implementation of an online multicenter documentation system.
- Establishment of the International Endometriosis Evaluation Program (IEEP) study.
- Inclusion of 696 endometriosis patients between June 2013 and June 2015.
Main Results:
- A functional documentation system was successfully created.
- The study structure and data collection processes were mapped.
- Procedures for biomaterial collection were established.
Conclusions:
- The documentation system enables comprehensive recording of endometriosis patient history and clinical data.
- The IEEP integrates clinical data with biomaterials for scientific investigation.
- Recorded data can inform clinical quality control and the evaluation of certified endometriosis centers.
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