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Published on: March 9, 2015
Understanding patient experiences with scarring alopecia: a qualitative study with management implications
Alessandra Haskin1, Crystal Aguh2, Ginette A Okoye2
1a Department of Dermatology, Howard University College of Medicine , Washington , DC , USA.
Introduction:
Alopecia can have a significant negative impact on patient's lives. The objective of this study is to describe some of the emotional and psychological challenges that affect women with scarring alopecia (SA).
Methods:
A qualitative study design was used with open-ended, individual interviews with 10 women with biopsy-proven SA. Interviews were audio-taped, transcribed verbatim and analyzed thematically using ATLAS.ti analysis software.
Results:
Four overarching major themes (with several subthemes) emerged including the following: the negative emotional impact of SA, difficulties with concealing hair loss, negative experiences with diagnosis/management, and the importance of support from others. Patients reported that many of these issues were under-emphasized during doctor visits.
Conclusion:
Analysis of patient responses indicated that patients with SA contend with significant emotional and psychological sequelae of their diagnosis.
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