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Dignity Through Integrated Symptom Management: Lessons From the Breathlessness Support Service
Marjolein Gysels1, Charles C Reilly2, Caroline J Jolley3
1Department of Palliative Care, Policy & Rehabilitation, King's College London, Cicely Saunders Institute, London, UK; Centre for Social Science and Global Health, University of Amsterdam, Amsterdam, The Netherlands.
Journal of Pain and Symptom Management
|September 22, 2016
Summary
Integrated palliative and respiratory care enhanced patient dignity in advanced disease. This study explored dignity in refractory breathlessness, finding holistic symptom management and self-care support crucial for preserving dignity.
Area of Science:
- Palliative Care
- Respiratory Medicine
- Psychosocial Oncology
Background:
- Dignity in end-of-life care is under-researched and poorly conceptualized.
- Refractory breathlessness in advanced disease significantly impacts patients' quality of life.
- Integrated palliative and respiratory care models are emerging for complex patient needs.
Purpose of the Study:
- To explore the concept of dignity for patients experiencing refractory breathlessness.
- To analyze the implications of breathlessness on dignity in advanced disease.
- To evaluate the impact of integrated care on patient dignity.
Main Methods:
- Qualitative study utilizing cross-sectional interviews with 20 patients.
- Verbatim transcription and constant comparative analysis of interview data.
- Adaptation of Chochinov's dignity model based on patient experiences with breathlessness.
Main Results:
- The study confirmed the applicability of a conceptual dignity model for breathlessness patients.
- Physical distress and psychological factors are linked to illness-related concerns in breathlessness.
- Social stigma and the need for self-care practices were identified as key components of dignity.
Conclusions:
- Dignity is an integrated concept influenced by various factors, including illness-related concerns.
- Holistic symptom management and patient empowerment for self-care are vital for preserving dignity.
- Integrated palliative and respiratory care services can enhance patient dignity.
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