Related Experiment Video

Updated: Mar 14, 2026

The HoneyComb Paradigm for Research on Collective Human Behavior
06:48

The HoneyComb Paradigm for Research on Collective Human Behavior

Published on: January 19, 2019

9.9K

The need to unite

Merry France-Dawson1

  • 1Unit in Oxford.

Nursing Standard (Royal College of Nursing (Great Britain) : 1987)
|September 23, 2016
PubMed

Insights

The UK lacks a national sickle cell screening program, leading to delayed diagnosis and inadequate patient support. Government guidelines and funding for sickle cell disease management and counseling services remain insufficient.

Area of Science:

  • Public Health
  • Genetics
  • Healthcare Policy

Background:

  • Sickle cell disease (SCD) is a significant inherited blood disorder.
  • The absence of a national neonatal screening program in the UK hinders early detection.
  • Existing government policies inadequately address SCD management and support services.

Purpose of the Study:

  • To investigate the reasons behind the lack of a national neonatal screening program for sickle cell disease.
  • To examine the government's failure to provide specific guidelines for SCD management.
  • To assess the financial and operational challenges faced by sickle cell counselors.

Main Methods:

  • Policy analysis of existing healthcare legislation and guidelines.
  • Review of government reports and public health data related to SCD.
  • Interviews with healthcare professionals and patient advocacy groups.

Main Results:

  • No national neonatal screening program for sickle cell disease is established.
  • Specific government guidelines for sickle cell disease management are absent.
  • Counseling services for sickle cell patients are underfunded, impacting long-term planning and service delivery.

Conclusions:

  • Urgent implementation of a national neonatal screening program is recommended.
  • Development of comprehensive government guidelines for sickle cell disease care is crucial.
  • Increased and sustainable funding for sickle cell counseling services is necessary to improve patient support and outcomes.

More Related Videos

Establishment of a Clonal Culture of Unicellular Conjugating Algae10:53

Establishment of a Clonal Culture of Unicellular Conjugating Algae

Published on: July 14, 2018

14.3K
Purification and Quality Control of Recombinant Septin Complexes for Cell-Free Reconstitution11:50

Purification and Quality Control of Recombinant Septin Complexes for Cell-Free Reconstitution

Published on: June 23, 2022

2.7K

Related Concept Videos

Importance of Need for Affiliation01:25

Importance of Need for Affiliation

The need for affiliation is a fundamental human motive that drives individuals to form and maintain interpersonal relationships. This universal drive varies in intensity among individuals due to genetic predispositions and life experiences, shaping it into a relatively stable personality trait. Social inclusion enhances emotional well-being by fulfilling the need for affiliation, whereas social exclusion leads to distress, negative emotions, and cognitive impairments.Psychological and Emotional...
369
Maslow's Theory of Basic Human Needs01:28

Maslow's Theory of Basic Human Needs

Maslow's hierarchy is described with the help of a pyramidal shape. The most fundamental needs, physiological needs, are at the bottom of the pyramid.
Physiological needs such as hunger, thirst, sex, physical comfort, and survival are at the bottom of the pyramid. These are the components that are necessary to sustain life. Once the first level of needs has been met, the second level arises.
Safety needs include stability and predictability. Protection and freedom from danger are all a part...
3.4K
Need for Self-Esteem01:27

Need for Self-Esteem

The human need for self-esteem has long intrigued psychologists, leading to the development of several theories that explore its evolutionary and functional significance. Among the most influential are the sociometer, hierometer, and terror management theories. Each offers a unique perspective on why people strive for self-worth and how it shapes behavior and social interaction.Sociometer TheoryAccording to sociometer theory, self-esteem functions as an internal gauge of social acceptance. It...
254
Maslow's Need Hierarchy Theory01:27

Maslow's Need Hierarchy Theory

Abraham Maslow's theory of motivation, introduced in 1943, is widely known as the "Hierarchy of Needs." This theory posits that human needs are arranged in a hierarchical structure, starting with basic survival needs and progressing toward more complex psychological and self-fulfillment desires. The hierarchy is typically a pyramid, and the lower needs must be satisfied to reach the next level.
At the pyramid's base are physiological needs, including food, water, and shelter...
1.3K
Visual System01:26

Visual System

Light enters the eye through the cornea, a transparent, dome-shaped surface covering the surface of the eyeball that helps to direct and focus incoming light. This light is then channeled toward the pupil, an adjustable opening whose size is controlled by the iris. The iris, a pigmented muscle, regulates the amount of light entering the eye by contracting or dilating the pupil, thereby ensuring optimal light levels for clear vision.
Once through the pupil, the light passes through the lens, a...
2.2K
Relationship Formation02:12

Relationship Formation

What do you think is the single most influential factor in determining with whom you become friends and whom you form romantic relationships? You might be surprised to learn that the answer is simple: the people with whom you have the most contact. This most important factor is proximity. You are more likely to be friends with people you have regular contact with. For example, there are decades of research that shows that you are more likely to become friends with people who live in your dorm,...
46.3K