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Sporting Activities and Quality of Life in Children With Hemophilia: An Observational Study
Ruben Cuesta-Barriuso1, Ana Torres-Ortuño, Sofía Pérez-Alenda
1Department of Health Sciences (Dr Cuesta-Barriuso), Real Fundación Victoria Eugenia, Instituto de Salud Carlos III, Madrid, Spain; Department of Physiotherapy (Dr Cuesta-Barriuso), School of Biomedical and Health Sciences, European University of Madrid, Spain; Department of Psychiatry and Social Psychology (Drs Torres-Ortuño and Nieto-Munuera), Faculty of Medicine of University of Murcia, Murcia, Spain; Department of Physiotherapy (Drs Pérez-Alenda and Querol and Mr José Carrasco), University of Valencia, Valencia, Spain.
Introduction:
Sports activities are part of multidisciplinary treatments in people with hemophilia.
Aim:
The objective of this study was to assess the incidence of sports activities in the quality of life as perceived by children with hemophilia.
Methods:
A total of 53 children with hemophilia aged 7 to 13 years and 51 children without hemophilia were evaluated. The perception of quality of life, clinical variables, and the frequency of sports activities were registered. The joint condition of patients with hemophilia was measured with the Spanish version of the Haemophilia Joint Health Score.
Results:
There were no significant differences in the perception of quality of life between children with hemophilia and children without hemophilia. Sports activities in people with hemophilia promoted a greater health satisfaction.
Conclusions:
Sports activity in children with hemophilia is associated with an improved quality of life and joint health. It is also associated with improved psychosocial wellness.
