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The right place to die.

Thelma Agnew

    Nursing Older People
    |October 8, 2016
    PubMed
    Summary

    Older people in extra care housing may not have a dignified end-of-life care choice at home. This is because extra care housing is not officially recognized as a permanent

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    Nursing older people·2016

    Area of Science:

    • Gerontology
    • Public Health
    • Housing Studies

    Background:

    • The UK government's strategy promotes dignified end-of-life care, ideally at home.
    • Extra care housing offers a model for older people's independent living with support.
    • A gap exists in recognizing extra care housing as a 'home for life'.

    Purpose of the Study:

    • To investigate whether residents of extra care housing are afforded the choice of end-of-life care at home.
    • To examine the implications of extra care housing's 'home for life' status on end-of-life care provision.

    Main Methods:

    • Analysis of the report 'Is It That Time Already?' by Housing 21 and the National End-of-Life Care programme.
    • Review of current government end-of-life care strategies and housing policies.
    • Qualitative assessment of the 'home for life' concept within extra care settings.

    Main Results:

    • Extra care housing residents may face barriers to choosing end-of-life care at home.
    • The lack of 'home for life' recognition for extra care housing impacts care choices.
    • Older adults' preferences for dying at home are potentially unmet.

    Conclusions:

    • Policy and recognition are needed to ensure extra care housing is considered a 'home for life'.
    • This will enable older people in these settings to access dignified end-of-life care as they choose.
    • Further research into the specific needs and rights of extra care housing residents is recommended.

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