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The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning,
Candice L Osborne1,2, Christina Petersson3,4, James E Graham2
1a Department of Physical Medicine and Rehabilitation , University of Texas Southwestern Medical Center , Dallas , TX , USA.
Disability and Rehabilitation
|October 21, 2016
Summary
The Burn Injury Model Systems (BMS) assessments need revisions to better capture the full recovery experience of burn patients. Current measures, while psychometrically sound, may miss key aspects of functioning and environmental factors crucial for comprehensive burn care.
Area of Science:
- Rehabilitation research
- Burn injury outcomes
- Health services research
Background:
- The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Burn Injury Model Systems (BMS) database collects patient-reported outcomes.
- Existing BMS outcome measures possess good psychometric properties.
- Concerns exist regarding the comprehensiveness of BMS data in capturing the full spectrum of burn patient experiences over time.
Purpose of the Study:
- To classify and describe the content of BMS assessments using the International Classification of Functioning, Disability and Health (ICF).
- To identify gaps in the coverage of ICF components within BMS assessments.
- To inform potential improvements in burn injury data collection.
Main Methods:
- Meaningful concepts from BMS assessments were systematically linked to the ICF framework.
- Two experienced coders performed the ICF linking process.
- The perspective of each assessment (e.g., health status) was determined.
Main Results:
- The body function component was most frequently addressed in BMS assessments.
- Activities and participation were also well-represented.
- Body structures and environmental factors were found to be underrepresented.
- ICF chapter and category distribution varied significantly across assessments.
- Assessments primarily adopted a health status perspective.
Conclusions:
- BMS assessments require revision to ensure a more balanced inclusion of ICF topics relevant to burn injury recovery.
- Improving item composition will lead to a broader and more precise understanding of burn recovery.
- Enhanced data collection can drive clinical practice innovations and improvements in burn care.
- There is a need for global burn clinician expertise in developing an ICF Core Set for burn injury.
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