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The National Data Bank for Rheumatic Diseases (NDB)
1National Data Bank for Rheumatic Diseases, Wichita, KS; and University of Nebraska Medical Center, Omaha, NE, USA. kaleb@ndb.org.
Abstract:
The National Data Bank for Rheumatic Diseases (NDB) is a longitudinal observational patient-driven database, founded as a non-profit research organization in 1998 by Dr. Frederick Wolfe. Patients are sent a primary questionnaire twice a year. More than 50,000 patients with more than 100 various rheumatic diseases under the care of more than 1,500 rheumatologists have completed at least one 6-month questionnaire. Many important publications concerning rheumatoid arthritis, osteoarthritis, systemic lupus erythematosus, fibromyalgia, and pharmaco-epidemiology have resulted from NDB research.
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