Diagnosing infantile spasms: Accuracy of the internet

Infantile spasms, one of the catastrophic epilepsies, can be a diagnostic challenge since the clinical manifestations may be subtle and may mimic benign conditions. Because of the rarity of the condition, primary care physicians and pediatricians may never see a case of infantile spasms during their career and may be unfamiliar with the seizure semiology. This is a serious issue since there is evidence that early diagnosis and treatment may improve outcome. Patients and families are increasingly using the internet more than their physician as a source of medical information about epilepsy. The reliance on using the internet for diagnostic information raises concerns about the accuracy of posted material that has not undergone professional review. To assess the quality of information being obtained about infantile spasms, we reviewed written and video content addressing infantile spasms on the internet. A total of 135 websites and 156 videos were reviewed for accuracy. Using the search terms Infantile Spasms and West Syndrome, we report that the majority of the written and video information provided was accurate and provided important and pertinent information. We conclude that internet searches provide accurate and pragmatic information about infantile spasms that has the potential for reducing the delay between the onset of the spasms and medical intervention.