Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Ethical Standards II01:23

Ethical Standards II

1.4K
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
1.4K
Ethical Standards I01:25

Ethical Standards I

1.7K
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
1.7K
Human Genetics01:28

Human Genetics

1.8K
Human genetics provides a profound framework for understanding the interplay between genetic predispositions and human psychology. At the heart of this discipline lies the study of how genes influence physical traits, behaviors, and susceptibility to diseases. Each person carries a unique genetic code that subtly or significantly shapes their psychological and behavioral landscape.
The complex relationship between genetics and psychology is observable through common biological components such...
1.8K
Genome-wide Association Studies-GWAS01:11

Genome-wide Association Studies-GWAS

16.4K
Genome-wide association studies or GWAS are used to identify whether common SNPs are associated with certain diseases. Suppose specific SNPs are more frequently observed in individuals with a particular disease than those without the disease. In that case, those SNPs are said to be associated with the disease. Chi-square analysis is performed to check the probability of the allele likely to be associated with the disease.
GWAS does not require the identification of the target gene involved in...
16.4K
Pharmacogenomics: Identification of New Drug Targets01:29

Pharmacogenomics: Identification of New Drug Targets

61
Advances in genomics have profoundly influenced drug discovery by increasing both the speed and accuracy of pharmaceutical development. Pharmacogenomics, which examines how genetic variation influences drug response, facilitates the identification of novel therapeutic targets and enables patient stratification for personalized treatment. These strategies contribute to improved drug efficacy, minimized adverse effects, and more efficient clinical trial design.Mapping genetic differences...
61
Genetic Screens02:46

Genetic Screens

5.8K
Genetic screens are tools used to identify genes and mutations responsible for phenotypes of interest. Genetic screens help identify individuals or a group of people at risk of developing  genetic diseases and help them with early intervention, targeted therapy, and reproductive options.
Forward genetic screens
Forward or “classical” genetic screens involve creating random mutations in an organism’s DNA using radiation, mutagens, or insertion of additional bases, which...
5.8K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

A modified Sequential Intercept Model for people living with dementia to prevent interactions with the criminal legal system.

The Gerontologist·2026
Same author

Response to Open Peer Commentaries: "Principlistic Equality: The Relative Importance of the Four Principles Among Primary and Urgent Care Clinicians".

The American journal of bioethics : AJOB·2026
Same author

Goal Concordance in the Advancing Symptom Alleviation with Palliative Treatment Clinical Trial of a Nurse and Social Worker Palliative Telecare Team Intervention.

Journal of palliative medicine·2026
Same author

"Black box" artificial intelligence for mortality prediction: a mixed-methods study of palliative care team, patient, and caregiver perspectives.

Annals of palliative medicine·2026
Same author

<i>Letter:</i> Measuring Goal Concordance Using a Likert Scale in the ADAPT Clinical Trial.

Journal of palliative medicine·2026
Same author

Stakeholder views about the responsibilities of principal investigators in multicenter randomized controlled trials.

Clinical trials (London, England)·2026

Related Experiment Video

Updated: Mar 13, 2026

In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila
06:41

In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila

Published on: August 20, 2019

14.4K

Trust, vulnerable populations, and genetic data sharing.

Jalayne J Arias1, Genevieve Pham-Kanter2, Rosa Gonzalez1

  • 1Department of Bioethics, Cleveland Clinic.

Journal of Law and the Biosciences
|October 25, 2016
PubMed
Summary

New policies aim to enhance protections for individuals participating in genetic data sharing research. This study proposes improved models to mitigate risks like stigma and discrimination for vulnerable groups.

Keywords:
Data Sharinggeneticgenomicpolicyresearchscientific norms

More Related Videos

Targeted Next-generation Sequencing and Bioinformatics Pipeline to Evaluate Genetic Determinants of Constitutional Disease
09:34

Targeted Next-generation Sequencing and Bioinformatics Pipeline to Evaluate Genetic Determinants of Constitutional Disease

Published on: April 4, 2018

35.0K
Generation of Comprehensive Thoracic Oncology Database - Tool for Translational Research
11:18

Generation of Comprehensive Thoracic Oncology Database - Tool for Translational Research

Published on: January 22, 2011

16.5K

Related Experiment Videos

Last Updated: Mar 13, 2026

In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila
06:41

In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila

Published on: August 20, 2019

14.4K
Targeted Next-generation Sequencing and Bioinformatics Pipeline to Evaluate Genetic Determinants of Constitutional Disease
09:34

Targeted Next-generation Sequencing and Bioinformatics Pipeline to Evaluate Genetic Determinants of Constitutional Disease

Published on: April 4, 2018

35.0K
Generation of Comprehensive Thoracic Oncology Database - Tool for Translational Research
11:18

Generation of Comprehensive Thoracic Oncology Database - Tool for Translational Research

Published on: January 22, 2011

16.5K

Area of Science:

  • Genomic research ethics
  • Public health policy
  • Biomedical data governance

Background:

  • Recent policies, including the Common Rule and NIH Genetic Data Sharing Policy, aim to bolster research subject protections.
  • Sharing genetic data necessitates robust safeguards against confidentiality breaches, stigma, and discrimination.
  • Existing policies are evolving, prompting further discussion on effective protection models.

Purpose of the Study:

  • To extend the discourse on improving genomic data sharing policies.
  • To propose enhanced protection models for research subjects, particularly vulnerable populations.
  • To address the ethical considerations of individual and group preferences in data sharing.

Main Methods:

  • Literature review of current genetic data sharing policies and regulations.
  • Analysis of ethical frameworks for research subject protection.
  • Conceptual development of improved data sharing models based on stakeholder feedback.

Main Results:

  • Identification of gaps in current policies regarding protection for vulnerable groups.
  • Emphasis on the importance of incorporating individual and group preferences into policy design.
  • Development of a framework for enhanced genomic data sharing protections.

Conclusions:

  • Improved genomic data sharing policies are crucial for protecting research subjects.
  • Models must address the specific risks of stigma and discrimination faced by certain populations.
  • Ongoing dialogue and policy refinement are essential for ethical genetic data sharing.