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Core requirements for successful data linkage: an example of a triangulation method
Y M Hopf1, J Francis2, P J Helms3
1Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK.
BMJ Open
|November 1, 2016
Summary
Healthcare professionals and stakeholders support linking UK National Health Service (NHS) data for paediatric pharmacovigilance. Core requirements for a data linkage system were identified, with additional preferable elements to enhance engagement.
Area of Science:
- Pharmacovigilance
- Health Informatics
- Public Health
Background:
- Paediatric pharmacovigilance relies on accurate drug safety data.
- Linking National Health Service (NHS) data offers potential for improved surveillance.
- Understanding professional and healthcare professional (HCP) perspectives is crucial for system development.
Purpose of the Study:
- To explore views on linking UK NHS data for paediatric pharmacovigilance.
- To identify essential requirements for a data linkage system.
- To develop recommendations for implementing such a system.
Main Methods:
- Mixed-methods approach: literature review, interviews, focus groups, Delphi survey.
- Theoretical Domains Framework used for survey structure.
- Matrix-based triangulation and thematic coding of findings.
Main Results:
- 21 out of 25 key findings were agreed upon through triangulation.
- Identified core requirements: practical/technical, mandatory, and essential.
- Support for a paediatric linked database was confirmed.
Conclusions:
- Paediatric linked database development is supported by stakeholders and HCPs in Scotland.
- Three sets of core requirements identified for data linkage.
- A fourth set of 'preferable' requirements could enhance HCP engagement and support.
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