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The Danish Cerebral Palsy Follow-up Program.

Helle Mätzke Rasmussen¹, Kirsten Nordbye-Nielsen², Bjarne Møller-Madsen²

¹Department of Pediatrics, The Danish Cerebral Palsy Follow-up Program, Lillebaelt Hospital, Kolding; Department of Orthopedic Surgery and Traumatology, Institute of Clinical Research, Odense University Hospital, University of Southern Denmark, Odense.

Clinical Epidemiology

|November 9, 2016

Summary

The Danish Cerebral Palsy Follow-up Program monitors healthcare quality for children with cerebral palsy (CP). This national database collects data to improve CP care and research.

Keywords:

cerebral palsy clinical quality database hip surveillance

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Area of Science:

Pediatric Neurology
Rehabilitation Medicine
Public Health

Background:

Cerebral palsy (CP) affects children, necessitating specialized healthcare monitoring.
The Danish Cerebral Palsy Follow-up Program was established to address this need.
A national clinical quality database is crucial for tracking and enhancing CP care.

Approach:

The program enrolls children aged 0-15 with CP and 0-5 with CP symptoms.
Regular examinations by multidisciplinary teams assess motor function, diagnosis, and orthopedic status.
Six quality indicators are derived from key variables like hip radiography, motor function, and diagnosis.

Key Points:

The 2014 report covered 432 children with CP across three Danish regions, achieving 82% population coverage.
Data collection includes annual assessments of motor function, manual ability, and orthotics.
Radiographic hip examinations and diagnoses are integral to the data.

Conclusions:

The Danish Cerebral Palsy Follow-up Program is evolving into a comprehensive national clinical quality database.
This database offers significant potential for research into CP prevalence and treatment efficacy.
It serves as a vital tool for improving health outcomes for children with CP.