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Related Experiment Videos

Danish Colorectal Cancer Group Database.

Peter Ingeholm1, Ismail Gögenur2, Lene H Iversen3

  • 1Danish Colorectal Cancer Group Database, Copenhagen; Department of Pathology, Herlev University Hospital, Herlev.

Clinical Epidemiology
|November 9, 2016
PubMed
Summary

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The Danish Colorectal Cancer Group database tracks patients to improve outcomes. It shows reduced mortality and increased survival for colorectal cancer patients since 2001.

Area of Science:

  • Oncology
  • Clinical Epidemiology
  • Health Informatics

Background:

  • Established in 2001, the Danish Colorectal Cancer Group database aims to enhance prognosis for patients with colorectal cancer.
  • It captures data for all newly diagnosed patients in Denmark, facilitating population-based research and quality improvement.

Approach:

  • The database collects comprehensive perioperative data, including surgical, radiological, oncological, and pathological variables.
  • Data includes patient diagnostics, comorbidities, surgical procedures, complications, and pathological risk factors.

Key Points:

  • Over 54,000 patients are registered, with high completeness (>95%) for colorectal adenocarcinoma.
  • Significant improvements observed include reduced 30-day mortality post-surgery (from >7% to <2%) and an increase in early-stage diagnoses after 2014.
Keywords:
clinical quality databasecolon neoplasmsdisease registerquality indicatorrectal neoplasms

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  • The database provides high-resolution data for diagnosis, surgical interventions, and short-term outcomes.

    • Conclusions:

    • This national, population-based clinical database demonstrates high data completeness for the perioperative period.
    • While lacking high-resolution oncological data and recurrence tracking, it has documented significant increases in both short- and long-term survival rates for colon and rectal cancer patients since 2001.