Related Experiment Videos
Danish Gynecological Cancer Database.
Sarah Mejer Sørensen1, Signe Frahm Bjørn1, Kirsten Marie Jochumsen2
1Department of Gynecology, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Clinical Epidemiology
|November 9, 2016
Summary
The Danish Gynecological Cancer Database (DGCD) monitors treatment quality and collects diagnostic data for gynecological cancers. Its comprehensive data linkage ensures high data validity for research.
Area of Science:
- Gynecological oncology
- Clinical database management
- Public health surveillance
Background:
- The Danish Gynecological Cancer Database (DGCD) was established to monitor treatment quality and facilitate research for Danish gynecological cancer patients.
- It systematically records diagnostic measures for various gynecological cancers.
Approach:
- DGCD commenced in 2005, encompassing all patients treated for ovarian, peritoneal, fallopian tube, cervical, vulvar, vaginal, and uterine cancers.
- Data is organized into clinical, surgical, pathological, care, and follow-up forms, linked with national registries via the unique Danish personal identification number (CPR number).
Key Points:
- The database integrates data from the Pathology Registry, National Patient Registry, and Cause of Death Registry.
- DGCD forms capture extensive clinical variables, though oncological treatment data registration is noted as incomplete for some patients.
- Online data access is available via the Statistical Analysis Software portal.
Conclusions:
- DGCD's strength lies in its comprehensive data collection and linkage with multiple registries, enabling robust data validation and completeness.
- The database's success is evidenced by annual reports, high patient coverage, and numerous peer-reviewed publications.
- DGCD provides a valuable resource for advancing gynecological cancer research and improving patient care.