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The Danish Heart Registry.

Cengiz Özcan¹, Knud Juel², Jens Flensted Lassen³

¹The National Institute of Public Health, University of Southern Denmark, Copenhagen K, Denmark; Department of Cardiology, Copenhagen University Hospital Gentofte, Hellerup, Denmark.

Clinical Epidemiology

|November 9, 2016

Summary

The Danish Heart Registry (DHR) monitors invasive cardiac procedures for ischemic and valvular heart disease, providing valuable data for research and quality improvement. This national registry ensures comprehensive data collection and high completeness for cardiac interventions.

Keywords:

cardiac surgery coronary angiography nationwide percutaneous coronary intervention

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Area of Science:

Cardiovascular medicine
Public health surveillance
Medical informatics

Background:

The Danish Heart Registry (DHR) was established to monitor nationwide activity and quality of invasive diagnostic and treatment strategies for ischemic heart disease and valvular heart disease.
The registry also aims to provide a data platform for cardiovascular research.

Approach:

The DHR includes all adult patients (≥15 years) undergoing coronary angiography (CAG), percutaneous coronary intervention (PCI), coronary artery bypass grafting, and heart valve surgery across all Danish hospitals.
Data is collected from the Eastern and Western Denmark Heart Registries (EDHR and WDHR), with up to 70 variables registered per procedure.
A robust data quality protocol, implemented since 2010, involves web-based validation rules and annual data approval by the EDHR and WDHR.

Key Points:

Data collection for PCI and surgery is complete since 2000, and for CAG since 2006.
Between 2000 and 2014, there were significant increases in CAG (231%), PCI (193%), and surgical procedures (99%).
By the end of 2014, the DHR contained data for 357,476 CAG, 131,309 PCI, and 60,831 surgical procedures, with high completeness rates (>90%) compared to the National Patient Registry.

Conclusions:

The DHR is a crucial national monitoring and quality system for cardiac invasive procedures.
It provides valuable data for research projects in the cardiovascular field.
The registry's high data completeness and quality assurance mechanisms make it a reliable resource.