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The Danish Heart Registry
Cengiz Özcan1, Knud Juel2, Jens Flensted Lassen3
1The National Institute of Public Health, University of Southern Denmark, Copenhagen K, Denmark; Department of Cardiology, Copenhagen University Hospital Gentofte, Hellerup, Denmark.
Insights
The Danish Heart Registry (DHR) monitors invasive cardiac procedures for ischemic and valvular heart disease, providing valuable data for research and quality improvement. This national registry ensures comprehensive data collection and high completeness for cardiac interventions.
Area of Science:
- Cardiovascular medicine
- Public health surveillance
- Medical informatics
Background:
- The Danish Heart Registry (DHR) was established to monitor nationwide activity and quality of invasive diagnostic and treatment strategies for ischemic heart disease and valvular heart disease.
- The registry also aims to provide a data platform for cardiovascular research.
Approach:
- The DHR includes all adult patients (≥15 years) undergoing coronary angiography (CAG), percutaneous coronary intervention (PCI), coronary artery bypass grafting, and heart valve surgery across all Danish hospitals.
- Data is collected from the Eastern and Western Denmark Heart Registries (EDHR and WDHR), with up to 70 variables registered per procedure.
- A robust data quality protocol, implemented since 2010, involves web-based validation rules and annual data approval by the EDHR and WDHR.
Key Points:
- Data collection for PCI and surgery is complete since 2000, and for CAG since 2006.
- Between 2000 and 2014, there were significant increases in CAG (231%), PCI (193%), and surgical procedures (99%).
- By the end of 2014, the DHR contained data for 357,476 CAG, 131,309 PCI, and 60,831 surgical procedures, with high completeness rates (>90%) compared to the National Patient Registry.
Conclusions:
- The DHR is a crucial national monitoring and quality system for cardiac invasive procedures.
- It provides valuable data for research projects in the cardiovascular field.
- The registry's high data completeness and quality assurance mechanisms make it a reliable resource.
Aim:
The Danish Heart Registry (DHR) seeks to monitor nationwide activity and quality of invasive diagnostic and treatment strategies in patients with ischemic heart disease as well as valvular heart disease and to provide data for research.
Study Population:
All adult (≥15 years) patients undergoing coronary angiography (CAG), percutaneous coronary intervention (PCI), coronary artery bypass grafting, and heart valve surgery performed across all Danish hospitals were included.
Main Variables:
The DHR contains a subset of the data stored in the Eastern and Western Denmark Heart Registries (EDHR and WDHR). For each type of procedure, up to 70 variables are registered in the DHR. Since 2010, the data quality protocol encompasses fulfillment of web-based validation rules of daily-submitted records and yearly approval of the data by the EDHR and WDHR.
Descriptive Data:
The data collection on procedure has been complete for PCI and surgery since 2000, and for CAG as of 2006. From 2000 to 2014, the number of CAG, PCI, and surgical procedures changed by 231%, 193%, and 99%, respectively. Until the end of 2014, a total of 357,476 CAG, 131,309 PCI, and 60,831 surgical procedures had been performed, corresponding to 249,445, 100,609, and 55,539 first-time patients, respectively. The DHR generally has a high level of completeness (1-missing) of each procedure (>90%) when compared to the National Patient Registry. Variables important for assessing the quality of care have a high level of completeness for surgery since 2000, and for CAG and PCI since 2010.
Conclusion:
The DHR contains valuable data on cardiac invasive procedures, which makes it an important national monitoring and quality system and at the same time serves as a platform for research projects in the cardiovascular field.
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