The Danish Lung Cancer Registry
Erik Jakobsen1, Torben Riis Rasmussen2
1Department of Thoracic Surgery, Odense University Hospital; Odense Patient data Exploratory Network (OPEN), Institute of Clinical Research, University of Southern Denmark, Odense.
Clinical Epidemiology
|November 9, 2016
Summary
The Danish Lung Cancer Registry (DLCR) improves lung cancer patient care. This database tracks over 50,000 cases, providing valuable data for research and quality improvement in Denmark.
Area of Science:
- Oncology
- Public Health
- Clinical Informatics
Background:
- Established by the Danish Lung Cancer Group, the Danish Lung Cancer Registry (DLCR) aims to enhance survival and clinical management for lung cancer patients.
- The registry includes all Danish primary lung cancer patients diagnosed since 2000, encompassing over 50,000 cases.
Approach:
- The DLCR database collects comprehensive patient data, including demographics, diagnostics, histology, staging, lung function, performance status, comorbidities, and treatment details.
- Since November 2013, Patient-Reported Outcome Measures (PROMs) have been integrated, offering a more holistic view of patient experience.
- Results are disseminated through monthly online quality indicators and annual reports, facilitating audits and providing detailed insights into diagnostics and treatment.
Key Points:
- The DLCR serves as a vital tool for monitoring and improving the quality of lung cancer treatment across Denmark.
- The registry's extensive data facilitates research into lung cancer epidemiology, treatment efficacy, and outcomes.
- Data from the DLCR is increasingly used for comparative studies with international lung cancer data.
Conclusions:
- The DLCR has demonstrably improved the quality of lung cancer care in Denmark since its inception.
- The registry is a valuable and growing resource for both national and international lung cancer research.
- Continued use of the DLCR is expected to drive further advancements in lung cancer management and patient outcomes.
