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Contemporary Pediatric Palliative Care: Myths and Barriers to Integration into Clinical Care

Stefan J Friedrichsdorf1

  • 1Medical Director, Department of Pain Medicine, Palliative Care and Integrative Medicine, Children`s Hospitals and Clinics of Minnesota, 2525 Chicago Ave S, Minneapolis, MN 55404. United States.

Current Pediatric Reviews
|November 17, 2016
PubMed

Insights

Pediatric palliative care (PPC) can help millions of children facing serious illnesses. This review examines common barriers to implementing PPC, aiming to improve quality of life and potentially prolong life for these children.

Area of Science:

  • Pediatrics
  • Palliative Care
  • Medical Ethics

Background:

  • Over 20 million children annually require pediatric palliative care (PPC).
  • In the US, over 42,000 children died in 2013, with a significant proportion being infants.
  • Barriers often hinder the effective implementation of PPC for children with advanced serious illnesses.

Purpose of the Study:

  • Critically review eight common assumptions, myths, and barriers to PPC implementation.
  • Define interdisciplinary PPC as specialized medical care focused on patient goals.
  • Highlight the importance of PPC in improving the quality of life for children and their families.

Main Methods:

  • Literature review and critical analysis of existing assumptions and barriers.
  • Examination of the definition and scope of interdisciplinary Pediatric Palliative Care.
  • Synthesis of evidence regarding the impact of PPC on quality of life and survival.

Main Results:

  • Identified eight prevalent assumptions, myths, and barriers impacting PPC delivery.
  • Clarified that PPC is goal-oriented, symptom-focused medical care, appropriate at all stages of illness.
  • PPC aims to alleviate pain, distressing symptoms, and the stress associated with serious illness.

Conclusions:

  • Addressing identified barriers is crucial for wider PPC implementation.
  • Pediatric palliative care significantly enhances the quality of life for children and their families.
  • Emerging evidence suggests PPC may also contribute to the prolongation of life.

Keywords:
Childinterdisciplinarypediatric palliative careprognosisprolongationserious illness

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