Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Specialized Care Centers and Settings-II01:30

Specialized Care Centers and Settings-II

1.3K
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
1.3K
Specialized Care Centers and Settings-I01:30

Specialized Care Centers and Settings-I

1.5K
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
1.5K
Peripheral Artery Disease III: Interprofessional Care01:27

Peripheral Artery Disease III: Interprofessional Care

486
Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
486
Cardiomyopathy II: Dilated Cardiomyopathy01:30

Cardiomyopathy II: Dilated Cardiomyopathy

698
Dilated cardiomyopathy, or DCM, is a progressive myocardial disorder characterized by ventricular chamber dilation and contractile dysfunction.EtiologyVarious factors can cause DCM, including hypertension and heavy alcohol intake, which contribute to the weakening and enlargement of the heart muscle. Viral infections, such as Coxsackievirus B, adenoviruses, and influenza, can lead to DCM by causing inflammation and damage to heart tissue. Certain chemotherapeutic agents, including daunorubicin,...
698
Restorative Care01:19

Restorative Care

2.4K
Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...
2.4K
Cardiomyopathy V: Interprofessional Care01:29

Cardiomyopathy V: Interprofessional Care

566
Managing cardiomyopathy involves addressing underlying or precipitating causes, treating heart failure with medications, and implementing dietary changes and a balanced exercise and rest regimen.Lifestyle ModificationsCardiomyopathy patients should adopt a low-sodium diet to reduce fluid retention and manage heart failure. A personalized exercise and rest plan helps maintain physical fitness without overstraining the heart. Avoiding alcohol and tobacco is essential to prevent further damage to...
566

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Cardiac Safety Outcomes in Delandistrogene Moxeparvovec Clinical Trials for Duchenne Muscular Dystrophy with Up to 5 Years of Follow-up.

Cardiology and therapy·2026
Same author

Five-Year Outcomes With Delandistrogene Moxeparvovec in Patients With Duchenne Muscular Dystrophy: A Phase 1/2a Study.

Muscle & nerve·2026
Same author

Optimizing Care for Growth and Puberty in Duchenne Muscular Dystrophy: A Survey of Clinical Practice in the OPTIMIZE DMD Consortium.

Muscle & nerve·2026
Same author

Liver health in myotubular and centronuclear myopathies: a patient-driven data collection study to better understand liver health and improve standards of care.

Neuromuscular disorders : NMD·2026
Same author

AAV8 gene therapy and dietary insults together precipitate cholestatic liver disease in a mouse model of X-linked myotubular myopathy.

Science translational medicine·2026
Same author

Learnings from Patient Mortality after Delandistrogene Moxeparvovec Administration: A Report of Two Cases and Expert Committee Considerations for Future Mitigation and Management.

Human gene therapy·2026

Related Experiment Video

Updated: Mar 12, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
09:18

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy

Published on: January 12, 2019

11.0K

"The Certified Duchenne Care Center Program".

Kathi Kinnett1, James J Dowling2, Jerry R Mendell3

  • 1Parent Project Muscular Dystrophy, 401 Hackensack Ave, 9th Floor, Hackensack, NJ 07601, USA.

Neuromuscular Disorders : NMD
|November 19, 2016
PubMed
Summary
This summary is machine-generated.

Disparities in Duchenne care were addressed by the Transforming Duchenne Care Initiative. This led to the Certified Duchenne Care Center Program, standardizing care and improving outcomes for Duchenne muscular dystrophy patients.

Keywords:
CareCertificationCertified Duchenne Care CentersDuchenneParent Project Muscular Dystrophy (PPMD)

More Related Videos

Assessing Functional Performance in the Mdx Mouse Model
10:32

Assessing Functional Performance in the Mdx Mouse Model

Published on: March 27, 2014

34.0K
Development and Implementation of a Multi-Disciplinary Technology Enhanced Care Pathway for Youth and Adults with Concussion
08:13

Development and Implementation of a Multi-Disciplinary Technology Enhanced Care Pathway for Youth and Adults with Concussion

Published on: January 20, 2019

7.2K

Related Experiment Videos

Last Updated: Mar 12, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
09:18

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy

Published on: January 12, 2019

11.0K
Assessing Functional Performance in the Mdx Mouse Model
10:32

Assessing Functional Performance in the Mdx Mouse Model

Published on: March 27, 2014

34.0K
Development and Implementation of a Multi-Disciplinary Technology Enhanced Care Pathway for Youth and Adults with Concussion
08:13

Development and Implementation of a Multi-Disciplinary Technology Enhanced Care Pathway for Youth and Adults with Concussion

Published on: January 20, 2019

7.2K

Area of Science:

  • Neurology
  • Medical Care Standards
  • Clinical Trial Management

Background:

  • Variations in implementing CDC care guidelines cause Duchenne care discrepancies nationwide.
  • These inconsistencies lead to differing clinical outcomes for patients with similar baseline characteristics, complicating trial data and delaying drug development.
  • Lack of standardized care hinders reliable interpretation of clinical trial results and drug development for Duchenne muscular dystrophy.

Purpose of the Study:

  • To identify gaps in Duchenne care and define components for comprehensive care delivery.
  • To establish a standardized, high-quality care model across the United States through the Certified Duchenne Care Center Program.
  • To enhance the reliability of natural history studies and industry-sponsored trials by improving care consistency.

Main Methods:

  • Development and launch of the Transforming Duchenne Care Initiative by Parent Project Muscular Dystrophy.
  • Establishment of the Certified Duchenne Care Center Program to ensure consistent, high-standard care.
  • Creation of a network of multidisciplinary units for knowledge sharing within the Duchenne community.

Main Results:

  • Standardization of comprehensive Duchenne care across Certified Duchenne Care Centers.
  • Improved quality and access to care through standardized protocols.
  • Strengthened reliability of natural history studies and clinical trials.
  • Identification of best practices and refinement of outcome measures.
  • Accelerated dissemination and implementation of improved care standards.

Conclusions:

  • The Certified Duchenne Care Center Program effectively standardizes Duchenne care nationwide.
  • Standardization improves patient outcomes, enhances clinical trial reliability, and accelerates therapeutic advancements.
  • The program fosters a collaborative network, disseminating best practices and refining care standards for Duchenne muscular dystrophy.