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Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
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Assembling activity/setting participation with disabled young people.

Barbara E Gibson1, Gillian King2, Gail Teachman3

  • 1Department of Physical Therapy, University of Toronto and Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.

Sociology of Health & Illness
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Summary

This study explored how young people with complex disabilities navigate community activities. Findings reveal that dynamic "assemblages" of people, technology, and places shape participation, offering new insights for rehabilitation practices.

Keywords:
adolescencedisabilitypostmodernismrehabilitation

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Area of Science:

  • Rehabilitation Science
  • Disability Studies
  • Sociology of Technology

Background:

  • Traditional rehabilitation research often overlooks the interplay between individuals, technology, and their environment.
  • A post-critical approach is needed to better understand complex activity participation.

Purpose of the Study:

  • To explore activity and setting participation among young people with complex communication and/or mobility impairments.
  • To analyze how assemblages of persons, technologies, and socio-material places enable or constrain participation.

Main Methods:

  • Utilized a post-critical approach in a Canadian study with 19 young participants (14-23 years).
  • Employed integrated photo-elicitation, interviews, and participant observations of community-based activities.

Main Results:

  • Activity participation is shaped by dynamic assemblages of bodies, social meanings, and technologies.
  • Young people negotiated needs and desires within specific 'spacings' defined by material, temporal, and social factors.
  • Dis/abilities are enacted dynamically across geotemporal spaces, moving beyond static accessibility evaluations.

Conclusions:

  • The concept of assemblages offers a nuanced understanding of how participation is organized and negotiated.
  • This approach reveals potential new directions for healthcare, rehabilitation, and social care practices.
  • Highlights the importance of dynamic, context-specific analyses over static environmental assessments.