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Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
Ling Li1, Jing Xue2, Zhan-Zhan Li2
1Associate Senior Technician, Records Office, Guangzhou First People's Hospital, Guangzhou Medical College , Guangzhou, Guangdong, China .
Introduction:
Breast cancer patients are demanding more active roles in their care, especially in the initial diagnosis and treatment stages. At present, there is no suitable patient questionnaire that appropriately incorporates Chinese language, habits, and cultural differences.
Aim:
To develop and validate a patient-needs questionnaire for female breast cancer inpatients in China.
Materials And Methods:
The questionnaire structure was based on Maslow's model and a modern medical model. In the first step, a focus group was used to design 125 questions, of which 64 constituted the initial questionnaire for item screening with a group of 115 hospitalized patients with breast cancer. Items were included or excluded based on the evaluation of eight statistical analysis. Ultimately, 38 items were selected and validated. The reliability and validity of the 38-item questionnaire were determined in a cohort of 323 patients.
Results:
The scale was set up with the 38 selected items. The four primary areas were disease knowledge, medical environment, psychosocial parameters and sexual attitudes. Cronbach's coefficient was 0.959. The split-half reliability value was 0.935. Principal component factor analysis extracted four common factors.
Conclusion:
Our new questionnaire, designed to assess the care needs of Chinese inpatients with breast cancer is reliable, sensitive, effective, independent and representative. It can be used in medical practice as a tool for a more complete assessment of patients' needs.