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Is knowledge translation without patient or community engagement flawed?
Vivian R Ramsden1, Norma Rabbitskin2, John M Westfall3
1Department of Family Medicine, University of Saskatchewan, Saskatoon, Canada.
Authentic engagement with patients and communities is crucial throughout the research process. This includes co-presenting and co-publishing findings to ensure equitable knowledge translation and dissemination.
Area of Science:
- Health Research Ethics
- Community-Based Participatory Research
- Knowledge Translation
Background:
- Patient and community engagement is vital in all research stages.
- Authentic engagement ensures research reflects community needs and values.
Purpose of the Study:
- To initiate discussion on authentic engagement in developing presentations and manuscripts.
- To address the co-presentation and co-publication of research involving patients and communities.
Main Methods:
- Literature review and discussion.
- Analysis of ethical frameworks for research involving Indigenous peoples in Canada.
- Exploration of challenges in knowledge translation and dissemination.
Main Results:
- Canadian ethical guidelines mandate community involvement in research affecting them.
- Current practices often exclude patients/communities from dissemination.
- Funding and budgeting challenges hinder equitable knowledge translation.
Conclusions:
- Emphasize the need for authentic engagement in co-creating presentations and manuscripts.
- Call to action: How will you include patients/communities in your dissemination efforts?
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