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Published on: January 26, 2019
Home monitoring in Hawaii: the first 1,000 patients
Insights
Home cardiorespiratory monitoring for infants in Hawaii showed that while most parents found it reassuring, equipment issues were common. A significant number of infants experienced apnea or bradycardia, highlighting the need for reliable monitoring devices.
Area of Science:
- Pediatrics
- Neonatal Care
- Medical Devices
Background:
- Home cardiorespiratory monitoring is increasingly used for infants.
- Indications include apnea of prematurity, Apparent Life-Threatening Episodes (ALTE), and SIDS (Sudden Infant Death Syndrome) sibling monitoring.
- By 1986, Hawaii monitored 12.3/1000 live births.
Purpose of the Study:
- To assess the utilization and outcomes of home cardiorespiratory monitoring for infants in Hawaii.
- To evaluate parental satisfaction and identify challenges associated with the monitoring program.
Main Methods:
- Retrospective review of 1,000 infants prescribed home cardiorespiratory monitors by February 1988.
- Analysis of monitoring duration, reasons for discontinuation, and infant outcomes.
- Parental feedback collected via a quality assurance questionnaire.
Main Results:
- 27% of monitored infants experienced documented apnea or bradycardia.
- 17 infant deaths occurred among monitored patients; 2 were unmonitored at the time of death.
- Most parents reported high satisfaction, viewing monitors as reassuring, but equipment performance was a major concern.
Conclusions:
- Home cardiorespiratory monitoring is utilized for various infant conditions in Hawaii.
- While generally well-received by parents, equipment reliability is a significant issue.
- The program identified infants with significant cardiorespiratory events, underscoring the clinical utility of monitoring.
Abstract:
By February 1988, 1,000 Hawaii infants had been prescribed cardiorespiratory monitors for use at home. By 1986, 12.3/1000 live births were being monitored, principally for apnea related to prematurity but also following Apparent Life Threatening Episodes, (ALTE) as subsequent siblings of Sudden Infant Death Syndrome (SIDS) victims, and for an increasing variety of other conditions. Less than 3% of families used the monitor less than 1 week; 30% discontinued sooner than the program recommended. Twenty-seven percent of the monitored infants were judged to have experienced real apnea or bradycardia while on their monitors. Seventeen of the patients are known to be dead, with 2 of these deaths occurring while the symptomatic patient was not monitored. Parents responding to a quality assurance questionnaire were highly enthusiastic about monitoring and felt it was a source of reassurance rather than a stressor. Major problems encountered by monitoring families were related to equipment performance.
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