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Out-of-Home Placement for Children and Adolescents With Disabilities-Addendum: Care Options for Children and

Sandra L Friedman, Kenneth W Norwood,

    Pediatrics
    |December 13, 2016
    PubMed

    Insights

    Children with complex medical needs and developmental disabilities thrive at home. When home care isn't possible, community-based settings, like family homes, offer vital alternatives with available government funding.

    Area of Science:

    • Pediatrics
    • Developmental Disabilities
    • Healthcare Policy

    Background:

    • Children and adolescents with significant intellectual and developmental disabilities (IDD) and complex medical conditions require specialized, safe, and comprehensive care.
    • Meeting the medical and psychosocial needs of these vulnerable youth is paramount.
    • Ideally, care should be provided within the family home environment.

    Purpose of the Study:

    • To explore alternative community-based care settings for children and adolescents with IDD and complex medical needs when home-based care is not feasible.
    • To highlight the importance of family support and resource availability for community-based services.
    • To emphasize the role of pediatricians in advocating for accessible community care options.

    Main Methods:

    • This study reviews existing literature and policy regarding community-based care models for children with complex medical needs and IDD.
    • It examines the availability of government funding and variability in community programs across different states.
    • The role of pediatricians as patient and family advocates is discussed.

    Main Results:

    • Alternative non-congregate community-based settings, particularly family homes, are crucial when home care is not possible.
    • Government funding is available to support community-based care, but program and resource availability varies significantly by state.
    • Families require support in understanding and accessing available care options.

    Conclusions:

    • Ensuring that all children with complex medical needs have the option to live in a family home, whether their own or an alternative, is essential.
    • Pediatricians play a vital role in advocating for patients and families to access community services and improve resource availability.
    • Policy and resource development are needed to ensure equitable access to community-based care for all eligible children and adolescents.

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