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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Ensuring Quality in Online Palliative Care Resources.

Jennifer Tieman1

  • 1Discipline of Palliative and Supportive Services, Flinders University, Adelaide, SA 5042, Australia. jennifer.tieman@flinders.edu.au.

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Summary

This study details the creation of the CareSearch website, a national palliative care knowledge resource. It addresses challenges in online health information access for professionals and consumers, focusing on quality and relevance.

Keywords:
end-of-lifeevidence-based practiceknowledge translationpalliative care

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Area of Science:

  • Health Informatics
  • Palliative Care Research
  • Digital Health Literacy

Background:

  • Health evidence and information are crucial for clinical practice, policy-making, and consumer health management.
  • The internet has transformed health information dissemination and access, particularly for palliative and end-of-life care.
  • Challenges exist in ensuring online health resources are current, relevant, authoritative, and that users possess adequate skills to assess them.

Purpose of the Study:

  • To explore the processes and structures involved in developing a major national palliative care knowledge resource.
  • To address the needs of both health professionals and patients/families/carers in accessing reliable online information.
  • To enhance the creation and accessibility of authoritative online palliative care resources.

Main Methods:

  • Exploration of the development processes for the CareSearch website.
  • Analysis of structures implemented to ensure resource quality and relevance.
  • Consideration of user needs for health professionals and consumers.

Main Results:

  • The CareSearch website was developed to provide a centralized, authoritative source of palliative care information.
  • Processes were established to create and maintain current, relevant, and trustworthy online content.
  • The resource aims to bridge the gap in digital health literacy for accessing quality palliative care information.

Conclusions:

  • Developing national online health resources requires careful consideration of content creation, quality assurance, and user accessibility.
  • The CareSearch website serves as a model for delivering evidence-based palliative care information online.
  • Addressing digital health literacy is essential for empowering both health professionals and consumers in managing end-of-life care needs.