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Development and validation of the Palliative Care Knowledge Scale (PaCKS)
Elissa Kozlov1, Brian D Carpenter1, Thomas L Rodebaugh1
1Department of Psychology,Washington University in St. Louis,St. Louis,Missouri.
Palliative & Supportive Care
|December 28, 2016
Summary
A new scale, the Palliative Care Knowledge Scale (PaCKS), has been developed to reliably measure public knowledge about palliative care services. This tool will enable research into how knowledge impacts access and use of these important services.
Area of Science:
- Palliative Care Research
- Health Literacy Measurement
- Psychometric Scale Development
Background:
- Existing research highlights potential knowledge deficits in palliative care among the general population.
- Lack of validated instruments to assess palliative care knowledge has hindered research into service utilization.
- Understanding public knowledge is crucial for addressing barriers to accessing palliative care.
Purpose of the Study:
- To develop and validate a reliable and comprehensive scale for measuring knowledge about palliative care among non-healthcare professionals.
- To create a psychometrically sound instrument for assessing public understanding of palliative care services.
Main Methods:
- Development of an initial 38-item true/false question pool based on extensive pilot research.
- Testing of preliminary items with a diverse community sample (614 adults) and palliative care professionals (30).
- Assessment of the 13-item Palliative Care Knowledge Scale (PaCKS) for factor structure, reliability, stability, internal consistency, and validity.
Main Results:
- The developed 13-item Palliative Care Knowledge Scale (PaCKS) demonstrates psychometric properties that meet or exceed established standards.
- The PaCKS is a reliable and valid instrument for assessing knowledge of palliative care in the general population.
Conclusions:
- The Palliative Care Knowledge Scale (PaCKS) is the first psychometrically evaluated tool for assessing palliative care knowledge.
- This validated scale facilitates future research into the relationship between knowledge, access, and utilization of palliative care services.
- The PaCKS is essential for understanding and overcoming barriers to palliative care access and use.
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