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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

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Parental Perception of Risk Associated With Their Premature Infant.

Laura Fletcher¹, Tammy Pham, Helen Papaioannou

¹Division of Developmental and Behavioral Pediatrics, Steven and Alexandra Cohen Children's Medical Center of New York, New Hyde Park (Mss Fletcher and Pham and Drs Papaioannou and Milanaik); and Neonatal-Perinatal Medicine, North Shore University Hospital, Manhasset, New York (Dr Spinazzola).

Advances in Neonatal Care : Official Journal of the National Association of Neonatal Nurses

|January 4, 2017

Summary

Parental concern about premature infant outcomes is high, even when unsupported by medical data. Educating parents on gestation-adjusted age can reduce anxiety and improve their understanding of developmental expectations.

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Area of Science:

Neonatal Medicine
Developmental Pediatrics
Parental Mental Health

Background:

Preterm birth is associated with increased parental stress, depression, and anxiety.
Parental concern for premature infants persists regardless of gestational age.
No established gestational age threshold exists for parental concern or infant risk.

Purpose of the Study:

To examine parental concern regarding medical and developmental outcomes of premature infants.
To compare parental concerns with infant diagnoses and gestational age.
To investigate the relationship between parental knowledge and perceived infant outcomes.

Main Methods:

Surveyed parents of 60 premature infants in a follow-up clinic.
Assessed parental concern levels for 11 morbidities and gestation-adjusted age.
Compared parental concern scores with infant chart data using Chi-square tests.

Main Results:

Many parents expressed concerns not supported by their child's medical diagnoses.
Mean parental concern scores increased with decreasing gestational age.
62% of parents inaccurately reported their child's gestation-adjusted age.
Parents accurately reporting gestation-adjusted age were more likely to correctly anticipate developmental and growth patterns.

Conclusions:

Parental anxiety about neonatal intensive care unit (NICU) outcomes can be reduced through clear explanations of gestation-adjusted age and prematurity-related issues.
Physicians can help decrease parental stress in NICU graduates.
Further research is needed to link NICU graduate parental stress to condition severity and explore physician interventions.